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General : Greetings from FM-CFS Canada
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From: Rene  (Original Message)Sent: 2/17/2007 5:09 AM

Greetings from FM-CFS Canada

Hi,
 
........ [please sign]   up with the Patient Registry at FM-CFS Canada, and thank you for helping us better understand the demographics of our community.
 
To help you see some of the broad characteristics of our community, or at least those of you signing up with us, we've posted aggregate results in our web site's Media section. 
http://fm-cfs.ca/news.html
 
We would like to ask for your help in an email campaign.
 
You can help by emailing Members of Parliament and newspaper editors.  We have a link to the MP's email addresses on our web site, and we have a list of the major newspaper editors.  In both cases, we have a sample letter for you to use, but you are free to write something new.
 
Our goals?
 
1.  Invite Members of Parliament to support a motion and vote in the House of Commons to recognise May 12th as our awareness day.  The Senate did this for us last year, with a motion and a vote.
 
2.  Ask MPs to support including FM & ME/CFS on the Parliamentary Health Committee's agenda.
 
3.  To get more newspaper space so that politicians see we are a vocal community that should be listened to.
 
Nearly all of you indicated you would be willing to help with an email campaign, and with hundreds of you signing up in the last six months, we can make ourselves heard.
 
Here are the links:
 
Member of Parliament campaign:
http://fm-cfs.ca/MPAdoption.html
 
Letters to the Editors campaign:
http://fm-cfs.ca/editors.html
 
Please help.
 
Thank you,
 
John Ernst
Executive Director
FM-CFS Canada
412 - 99 Fifth Avenue
Ottawa, Ontario
Canada, K1S 5P5
http://fm-cfs.ca
Charitable Registration No. 89241 7742 RR0001
 


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