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Endo Stories : a little trick that helped me
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 Message 1 of 6 in Discussion 
From: MSN NicknameLou14128  (Original Message)Sent: 3/24/2005 9:55 AM
Hello everybody,
I'm new on this site. I've had endo for close to 15 years. At first, my mom thought I was faking so that I wouldn't have to go to school and I wasn't properly diagnosed until the age of 26 (I'm 30 now).
As time went by, the pain got so severe that I was up to 30 advils a days, barely to get by, for 3 weeks every month. I ended up in the hospital more than once to get morphine-based shots. I've had Lupron shots for a year... put on 20 pounds, lost my boobs, couldn't sleep... But the pain was gone. 3 months after I stopped, it was back, slowly increasing.
So doctors started talking about hysterectomy again...
And then something happened that truly changed my life.
I'd gotten on a diet to lose the extra pounds I'd put on with the Lupron and it was a no sugar diet. Now, I've always looooved sugar. I was a sugar/chocolate/ice cream junkie...and of course, when I was really in pain, nothing could soothe me better than a bag of gummie bears. So anyway, I got on that diet. It was a balanced diet, but no sugar. For five days, I thought I was going to die. I was sweathing, I was nauseated, I was tired, I had muscle cramps. I was just weaning myself from sugar.
A few days later, I got my period... and the pain was more than bearable.
Some natural doctors have argued that sugar worsens menstrual pain.
I resumed eating sugar and the pain was back. I stopped again, it was gone. i tried that several times over a period of 3 months to make sure... and it worked every time!!!
So I quit eating sugar altogether. What I mean by sugar is saccharose: cane and beet sugar. I eat plenty of fruit and when I feel like a cookie, I get  fructose-based (fructose is the natural sugar found in fruit) or a honey based  cookies at a health food store.
I quit eating sugar 2 years ago. Not only have I lost 20 pounds (without changing anything else), but my life has completely changed. I went from 3 weeks of unbearable pain to 3 days of perfectly manageable pain every month.
I also take onagre oil, konwn in Europe for its action against menstrual cramps.
The no sugar (saccharose) diet is demanding: there sugar in everything! Ketchup, turkey slices, bread... it's a drag and I spend my days reading labels... and it's really a NO Sugar (meaning not even a little bit). It's a drag but it's worth it! Try it for a week or a month. It's hard at first, but now I don't even think about it anymore.
I know it's changed my life. It's normal now.
So I just wanted to share that with you girls. I wish someone had told me sooner. It's not a fluke. It worked for me. I don't know if it's something that works for everyone, but in my case, it's great.
If you have any questions, I'll be glad to answer.
Good luck to all of you
  


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 Message 2 of 6 in Discussion 
From: MSN NicknameBabyFriscoSent: 3/24/2005 3:29 PM
Welcome, Welcome, welcome and..
Thank you for the advice.
Isn't that funny cause whenever its that time of the month I too crave suger.
Anyhow, great bunch of ladies here with a ton of experiences and knowledge.
I look forward to hearing more from you.
Welcome!
Hugs,
Lisa

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 Message 3 of 6 in Discussion 
From: MSN NicknameSwt_SamiSent: 3/25/2005 3:23 AM
Thanks for sharing, I'll have to keep that in mind. And maybe after
I've been off ciggarettes for a while I might try it. But I love my
family too much to quit both at the same time, lol.

Sherry

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 Message 4 of 6 in Discussion 
From: Kerriis32Sent: 4/27/2005 2:05 AM
Wow
That sounds great, but no sugar , don't know if I could do it!!!  It makes sense though I guess, I'm sure lots of these problems have to do with how we eat, therefore our lifestyle etc....  If only it were easy, but nothing is ever easy that i have learned many times over right?
Kerri

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 Message 5 of 6 in Discussion 
From: Sandi25Sent: 5/31/2005 9:28 AM
I just now read your messages. I am gonna try that oil stuff. I already know the sugar thing will help too. I've been doing low carb for the last few weeks and have notice a decrease in  my pain so now I'm gonna get even more strictly off sugar now that I've heard this. Thank you so much!! knowing knew ways to reduce my pain is awesome news!         Thanx again   Sandi

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 Message 6 of 6 in Discussion 
From: MSN NicknamepenfaithSent: 6/4/2005 8:02 AM
i've heard that the endo society published a diet book.  I dont know if that was discussed prior to this email - they come over my email.  Does anybody know how to get the book?  Salt tends to cause pain as well, - might want to stay away from that.   
 
-----Original Message-----
From: Sandi25 <[email protected]>
To: Endo chat line <[email protected]>
Sent: Tue, 31 May 2005 01:28:21 -0700
Subject: Re: a little trick that helped me

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New Message on Endo chat line

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From: Sandi25
Message 5 in Discussion

I just now read your messages. I am gonna try that oil stuff. I already know the 
sugar thing will help too. I've been doing low carb for the last few weeks and 
have notice a decrease in  my pain so now I'm gonna get even more strictly off 
sugar now that I've heard this. Thank you so much!! knowing knew ways to reduce 
my pain is awesome news!         Thanx again   Sandi

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