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Endo Stories : Angel's Saga....as thes stomach churns...
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From: MSN Nickname--Angel--13  (Original Message)Sent: 7/2/2002 10:07 PM
I remembered I posted this on Becky's page last  year  so have copy and pasted here for those who have not read it...
Hi ya girls...I am the Resident Angel.....well with a bent halo...from Vancouver Island Canada...I am 41 going on a 100...I have been married 21 years to my high school sweetheart.....I have 3 teen children, 19yrs young man ..almost 17yr young lady (but thinking she's 25..haha) and my baby...don't let him know I said that ..14yr young man...I am a stay at home Mom...at first by choice but eventually because of health issues....in the past I was a lifeguard/instructor...qualified daycare worker...worked for many home based companies (Aloette-make up; Tina Fiorda clothing; Princess House Crystal; Melalueka products and finally Nikken-magnetic products (which I find really helpful with my pain))...it took me over 17 years of hell before I was diagnosed with endo...I was dxed in Nov. 99...it was amazing how many of us were dxed that year....a rough summary of those 17 years are..zillions of bladder infections, 3 C-sections,hernia surgery, probalby at least a dozen of laps and laparotomies for adhesions..adhesions...adhesions..arghhhh, many cystascopes ...eventually being dxed with IC, hyster(leaving both ovaries),2 yrs later removal of 1 ovary as it had rotted inside, 6 fulgurations for blisters in the bladder, dmso treatments for IC, eventually lap that found endo all over the abdomen including diaphram/liver,bowel,colon,bladder and so on.....you know...there was nothing wrong with me ...stupid %$@#&*(@ docs..heehee...the doc removed as much endo as he could but found it really hard to do on the liver as it was completely covered..then Lupron...arghhh..never again for this chick...the doc hadn't read the literature on it so thought that it wasn't working ...so he double dosed me for 4 months..after 6 months I said enough and told them to go in and remove the last ovary..also asked them to take out the appendix and check the diaphram area...they did all but the diaphram which was causing me much pain..this was last July..went to the only endo specialist we have in our province and she did pain mapping and scope..found zillions of adhesions again..they were very dense in the liver/diaphram area..stupid jerk docs for not checking in july..which lead me to the long drawn out journey of this last year...and you all know that saga...haha...as the stomach churns...lol..I really think we should have a show about us..we are the True Survivors!!!! ...now you know the short of it...haha...and the moral of my story...ALWAYS BELIEVE IN YOURSELF!!!! Do Not allow anyone ...including docs ...say you are not in pain...and fight even if it means seeing many many docs...and always know..that endo sisters are always here for one another...they are the most compassionate bunch of women you will ever find....so hold your chins up high and fight for the cure to this disease...Thank you all for sharing your stories and I hope I didn't put you all to sleep with mine ...love and many healing hugs to you all.
Since I posted this on Becky's page I have had another lap (Aug 2001) removing tons of adhesions off my liver and diaphram...they  and the endo are back once again..I have completely got myself off the amitryptiline and only take the percocet when I really really need it...I felt all the drugs were doing more damage than good so decided to have a rest off them...I have started seeing a Nautre Path who does a variety of techniques and herbal remedies..I chose this root as all the docs could offer was more surgery...It's been a rough go ..still not sleeping and in quite a bit of pain but the nature path has managed tor relieve some of my pain..I don't think the endo/adhesion pain but many of the other owies that go along with stress etc on the body..so I am at one day at a time...hanging in there...I hope you all will share your stories too...thank for reading the novel..love and hugs..Angel
  


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