Endometriosis Support Groups

The Endometriosis Forum
The OBGYN.net Endometriosis Forum has been created primarily for women and those affected by the disease to exchange ideas, personal experiences, referrals, product recommendations (barring commercial advertising), procedures, support groups, books, publications, etc.

The Endometriosis Quilt
The purpose of the quilt is to demonstrate the global implications of endometriosis and to stand as a silent testament of the need for proper education to assist in a timely diagnosis of this life-altering and crippling disease of women.

Argentina

The Endometriosis Group Argentina was founded by the Instituto Ginecologico Buenos Aires in 1997 as the first support group for women with endometriosis in Argentina. Our group has a multi-disciplinary approach to endometriosis and have more than 600 members who have endometriosis. We arrange monthly meetings with the patients and coordinate these with a physician and a psychologist. Our target is the diffusion of endometriosis, the early diagnosis in the women from teenagers to adult women. 

Endometriosis Group Argentina
Av. Santa Fe 1675 2º A CP 1060
Capital Federal, Buenos Aires
ARGENTINA
t/f: +54 11 4815 4802
[email protected]
http://www.endometriosisgroup.com.ar/

Australia

The Endometriosis Association (Victoria) provides support and information for women with endometriosis so they can make decisions about the management of their endometriosis in the light of their preferences and lifestyles. To this end, they staff a telephone support and information line, run an endometriosis clinic with five specialist gynaecologists, and publish regular newsletters and specialist leaflets. We also work hard to raise the awareness ofendometriosis, especially in teenagers and young women. Much of its work is underpinned by its research projects which provides data to substantiate claims about endometriosis, itsdiagnosis and its impact.

Endometriosis Association (Victoria) Inc
567 Waterdale Road
Heidelberg West
Victoria 3081
AUSTRALIA
t: +61 (0)3 9457 2933
[email protected]
http://www.endometriosis.org.au/

Austria

Oesterreichische Endometriose Vereinigung was founded in Vienna in January 2003, and we have about 40 members.

We all suffer from endometriosis and we want to support the Austrian women with this disease. But we are more than a support group. We cooperate with doctors and therapists in the fight against endometriosis. Our target is also public relations to make endometriosis known in public.

Oesterreichische Endometriose Vereinigung
Obere Augartenstrasse 26-28
1020 Wien
AUSTRIA
t: +43 (0)676 4447344
f: +43 (0)2236 866653
[email protected]
http://www.endometriose-wien.at/

Brazil

ABEND - Associação Brasileira de Endometriose
Rua Claro de Camargo Sobrinho, 89 
Vila Pouso Alegre �?Barueri
SP Cep 06402-050
BRAZIL 
t: +55 11 4198 7456 
f: +55 11 4163 5086
[email protected]
http://www.abend.org.br/

Denmark

Endometriose Foreningen Denmark was founded in 1997 and provides advice, support, and information for women with endometriosis and their relatives. We work with national endometriosis specialists to increase awareness and understanding of the disease through countywide awareness campaigns and dedicated informational meetings in each of Denmark's counties.

Working closely with the National Institute of Health (Sundhedsstyrelsen), Endometriose Foreningen was instrumental in getting specialist guidelines published, which states that endometriosis must be treated at dedicated centres of excellence �?the first country in the world to have such guidelines.

We have developed a wide range of articles and literature on the disease in Danish, publish four newsletters a year, maintain a website, and organise two national meetings a year for women with endometriosis and their relatives. Endometriose Foreningen also provides specific materials for each gynaecological department in the country, which treats women with endometriosis.

Endometriose Foreningen
Kvorupvej 1, Ã…sted 
DK-6800 Varde 
DENMARK 
t: +45 2172 4300
f: +45 7525 4455
[email protected]
http://www.endo.dk/

Finland

Endometrioosiyhdistys Finland was founded in 1999 and was immediately met with interest and relief: it is vital to know that one is not alone.

We concentrate on providing advice and support via information material and several active, self-help discussion groups nation-wide. We also provide telephone support, maintain a website and publish a quarterly newsletter. We aim at a close collaboration with medical professionals and encourage all women to be proactive when living with endometriosis.

Endometrioosiyhdistys ry
PL 142
00531 Helsinki
FINLAND
t/f: +358 (0)50 380 6715
[email protected]
http://www.endometrioosiyhdistys.fi/

France

Association EndoFrance
17, allée des Eguerêts 
F-95280 Jouy le Moutier 
FRANCE 
[email protected]
www.endofrance.org

Germany

The Endometriose-Vereinigung Deutschland e. V. was founded in 1996 as a non-profit registered charity organisation. It is up to date the only self-help organisation for women with endometriosis in German-speaking countries such as Germany, Austria and Switzerland. We aim at supporting the self-empowerment of endo sufferers by way of information and exchange of experiences. Our work is also directed to induce or take part in research on endometriosis.

We provide a range of informational sheets, publish a newsletter four times a year and have established a website. We organise several small conferences and work shops throughout the year, with a special focus on the members meeting. The most important project in the near future is building up a helpline.
Since 1998 we have been able to assist women with endo in our counselling centre in Leipzig. If you wish to contact us in English, French or Russian please do so in written form (e-mail, fax or letter). The counselling centre will be helpful with any inquiries in German via phone.

Endometriose-Vereinigung Deutschland e.V.
Counselling centre Leipzig
Bernhard-Göring-Str. 152
04277 Leipzig
GERMANY
t: +49 (0)341 3 06 53 04
opening hours: Monday to Thursday 9-12 am, Thursday 1-6 pm
[email protected]
http://www.endometriose-vereinigung.de/

India

The Endometriosis Society India was founded in 2004, and held its first workshop on 23 April 2004.  Their motto is "to serve the people who need us".

Endometriosis Society India
6A & 6F Needlamber
28B Shakespeare Sarani
Kolkata 700 017
INDIA
t: +91 (0)33 2240 4463 / +91 (0)33 2865 0364
f: +91 (0)33 2281 1639
[email protected]

Ireland

	Endometriosis Association of Ireland Carmichael Centre  North Brunswick Street  Dublin 7  IRELAND  t: +353 1 8735702  f: + 353 1 8735737  [email protected] http://www.endo.ie/
	Endometriosis Support Group CORK 134 Evergreen Road  Cork  IRELAND  t: +353 (0)21 4975126  [email protected] www.esgcork.org

Italy

Associazione Italiana Endometriosi Onlus (AIE) is the first mutual self-help, non profit organisation and only organisation founded by women with endometriosis for women with endometriosis in Italy. 

The AIE Onlus provides support and in collaboration with our panel of medical advisors, accurate, current, and independent information about endometriosis for girls and women with endometriosis and others interested in this disease.

Founded in Milan in 1999 by three women with endometriosis the AIE was born out of the founders' desire to provide “tools�?to other women in order that they need not experience what they themselves had had to face. Over the last three years the AIE has successfully helped thousands of women nationwide.

The AIE's activities include (all activities are organised and run by volunteers):

• Network of support groups; 
• Range of publications distributed to women, physicians and the general community;
• Attendance at scientific congresses, seminars and other events to raise awareness and present “the patients point of view.�?
• Quarterly newsletter;
• Medical consultation service;
• Collaboration with national endometriosis specialists; 
• Telephone support network;
• Web-site that hosts our highly popular Forum in Italian;
• Regular nationwide meetings with participation of endometriosis specialists open to women and the community to promote better understanding of endometriosis.

Associazione Italiana Endometriosi Onlus
Casella Postale 114
I-20014 Nerviano (MI)
ITALY
t/f: +39 0331 589800
[email protected]
www.endoassoc.it

Japan

The Japan Endometriosis Association (JEMA), which is independent from government and any medical institutions, was established in 1994, and is organised /operated by women with endometriosis. The number of members reached 1,800 in August, 2002. JEMA is a non-profit organisation (NPO) for women with endometriosis that have continued to make efforts to find out the fact, and clarify and resolve the problem that we have faced in Japan. We have continuously provided the useful and beneficial information on endometriosis for most of the women with endometriosis, who could not know the disease and the medical circumstances exactly. Because it is very difficult to reach the actual information and exact knowledge that should be primarily given by medical care providers. We also notified the facts, the actual condition and the disease itself to the family of the women with endometriosis, medical institutions and pharmaceuticals, and the general public, in order to obtain the recognition of "endometriosis" as it is.

1-5-10-1012 Shimo-Ochiai,
Shinjuku-ku
Tokyo 168-0082 
JAPAN
[email protected]
http://www.jemanet.org/

Mexico

Associación de Endometriosis Capitulo Mexicano, A.C.
T: +52-55-51-49-04-68
[email protected]
http://www.mexendometriosis.com/

The Netherlands

Endometriose Stichting was founded in October 2002 as a non-profit registered charity organisation. It is the only self-help organisation for women with endometriosis in Dutch-speaking countries such as the Netherlands and the Flemish part of Belgium. Our work is also directed to induce or take part in research on endometriosis. We have our own advisory board with physicians with special interest in endometriosis.

Endometriose Stichting
Antwoordnummer 1789
2000 VC Haarlem
THE NETHERLANDS
t: +31 72 581 5320 Monday between 19.00 and 22.00 and Wednesday between 9.00 and 12.00
f: +31 72 581 5207
[email protected]
http://www.endometriose.nl/

New Zealand

The New Zealand Endometriosis Foundation Incorporated (NZEF) is a non-profit, registered Charitable Trust. The Foundation's aims are to provide education, information and support. It organises an internationally acclaimed Menstrual Health and Endometriosis Education programme in schools, publishes quarterly newsletters, convenes meetings and seminars to promote better understanding of endometriosis among sufferers, health professionals and the wider community; promotes research and encourages a nationwide personal network for girls and women sufferers and their families. The NZEF membership subscription is $NZ27.50 per annum. Our contact details are:

New Zealand Endometriosis Foundation Inc.
PO Box 1673
Christchurch
NEW ZEALAND
t: +64 (0)3 379 7959
f: +64 (0)3 379 7969
Support Line: 0800 733277 (New Zealand callers only)
[email protected]
http://www.nzendo.co.nz/

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