Hi Jana. I am very spiritual now. the night my daughter got so sick I was truly scared but I never felt alone.  I always felt God with me and watching over Jess.  When it comes to me I lay down and pray but I still am scared to fall asleep because that's when I seize.  I need to distract myself and its just not that easy. It comes naturally to me for others but for myself its still a work in progress. Thanks. Lori

Hi Lori and Jana,

 

Yes Jana is so right in all respects here. Find a safe place and sit or lay down, this way you will not fall and hurt yourself....

OMG, yes Prayer is everything. We are Gods special ones. I truly believe that, for we help others.

Yes stress is bad, I never have mine until the stress is over and I start to relax. Just finding out, you will learn how and when things happen, and how to be safe....I myself believe you can not controll them hun, they come when they want to. So don't think of it as much...I hope soon your Dr. can get them better under controll so you don't feel like this going to bed. My prayers are out there for you hun....

 

Hugs, withangels

Hi everyone. My daughter is still having a bit of trouble with the hives and I talked with my therapist last week because I find myself in utter panic when I try to sleep. She feels in addition to the stress of the seizures I have a strong case of PTST. As soon as I turn out the lights I feel like I am frozen in panic and drowning, the latter much like a pre warning for a siezure. She gave me some new coping skills that I am trying but until my daughter is stabilized I can't rest. I get that sick dizzy feeling that is generally a pre seizure warning. I am doing my best but this is really difficult for me. It is 3 15 am and I am still awake. I have tried twice to lay down actually dozing off but when I turn the tv off I feel very panicked. My balance has been off because I am tired and stressed and I know if this goes on much longer another seizure is just around the corner. I do pray and do the things on the list from the therapist but I need to keep practicing. thanks so much for your understanding. I imaging many of you feel scared about having another one and when you are looking after a sick person the stress level just makes relaxing worse. Lori

Hi Everyone. thanks for the great suggestions. My neuro told me not to take any baths unless someone else was home and if I had not had a seizure in a few months so I stick to showers for now. When I get myself worked up and the anxiety sets in any music annoys me, comedy shows which I normally love i find annoying. I went to see my therapist last week because I still can't sleep without having an anxiety attack. She is taking a different approach with my PTSD and some of the coping skills make sense. I also have to keep in mind that if I do not sleep I run the risk of having another siezure. Tim, most of my seizures happen in my sleep which is anxiety provoking as well. I feel if I just let go and sleep I will fall too far down and never wake up. My daughter saw the allergist today and actually broke out in a few hives while we were in the office. the doctor said that anything could be causing them and Jess needs to be free of antihistimes for a week before she can do the testing. She had some benedryl last week so she will have her testing done on Saturday. this doctor also told my daughter that her pediatrician never should have taken her off her thryoid medication because the thryoid tends to run low if you have hyopthryoidism and that in itself can cause anemia. I am very interested to know now what she is having a reaction to. I will keep you guys posted. thanks for all the good suggestions. Lori