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好康分享來這裡 : AAWSC MoCo Project dated May 24, 2007
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From: MSN Nicknamesummercoldrose  (Original Message)Sent: 5/27/2007 3:12 PM

<o:p></o:p> 

http://health.groups.yahoo.com/group/aawscmocoproject/ <o:p></o:p>

This is a group for Molybdenum cofactor deficiency research. Currently there are 100 cases around the world without any cure or treatment in this stage and most of these children die in early childhood. We are here as a volunteer Group to help them through out medical research and psychological and emotional support. We are seeking volunteer around the world to work with us enable to save this 8 months old boy currently lives in Taiwan. If you are interested in becoming our volunteer, please email to [email protected] we are looking forward for you to join us! Thanks again for your support.

Angel W. Cheng
AAWSC MoCo Project Coordinator<o:p></o:p>

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<o:p> </o:p>

MOCO缺乏�?/SPAN>(Molybdenum cofactor deficiency)  dated May 24, 2007<o:p></o:p>

<o:p> </o:p>

Mr. Lou works at UMC in <st1:country-region w:st="on"><st1:place w:st="on">Taiwan</st1:place></st1:country-region> whose son was diagnosed Molybdenum cofactor deficiency while he was just 5 months old and now he is 8 months old.  Mr. Lou has seeking anyway to help out his son through out the world.  We would like you to give them any information if you could through out medial treatment and research and thanks for your assistant.  It is sad that currently there is no treatment in Taiwan for his son and they only rely on any health food and Mr. Lou has told me that Taiwan medical team has no way of helping them at this point.  There is a German study on animal only and not sure how long would take for human testing.  We have set up a group discussion called Moco Project, please come to join us.

http://health.groups.yahoo.com/group/aawscmocoproject/ In addition, we are looking for volunteer to assist this project around the world.  If you are interested in, please email to [email protected]

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Volunteer can be doing as the followings:

  1. Medical or law consultant
  2. Research through current available documents
  3.  Translation documents
  4. Home visit for Moco families
  5. Answering email or phone calls
  6. Contact medical profession teams
  7. Post news on other sites or blogs
  8. enable to communicate via email or phone
  9. Writing professional documents
  10.  Medical Marketing Research

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<o:p> </o:p>

<o:p> </o:p>

盧先生他的小朋友患的是一�?/SPAN>MOCO缺乏�?/SPAN>(Molybdnum cofactor deficiency)
是罕見的病症  有些醫師甚至說不出病�?/SPAN> ?
請幫忙轉發信件或引用文章   讓他的小朋友早日找到能救他醫�?/SPAN> !
盧先�?/SPAN>'S e-mail:[email protected]
有消息可與他聯絡<o:p></o:p>

Dear all,<o:p></o:p>

If anyone can provide any information for help, please
contact with the father: UMC CRD_AM/AME/Metrology
盧瑞�?/SPAN> . UMC:03-5782258
Please also help to forward to your friends for any helpful information.<o:p></o:p>

各位朋友大家�?/SPAN>:<o:p></o:p>

我的兒子盧勁�?/SPAN>(8個月�?/SPAN> )現在住成大病�?/SPAN> , 醫生幫他作核磁共�?/SPAN>, 腦波, 腦超音波 ,
發現腦部已受損很嚴重 , 懷疑新陳代謝有問�?/SPAN>(8,9 成以�?/SPAN>), 體內毒素無法完全排出 ,
積在腦部 , 造成腦部受損嚴重, 身體一直再退�?/SPAN>, 隨時有生命危�?/SPAN> , 請問大家國內外有
醫生可以治療�?/SPAN> ?<o:p></o:p>

謝謝!<o:p></o:p>



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