This is such a hard day for me, I just found out that one of my Great nieces has a disease called Pearson Syndrome, as of now it has no cure. Paige just turned a year old on Dec 15th She had her 7th transfusion yesterday. This poor baby has beed through so much since September. and so has her mom and dad(my nephew).
They say from what I read that most don't make it through early childhood, There is only 60 know cases in the world.
So please everyone say a prayer for Paige & her mommy Teara & daddy George.
Shes such a precious little girl and shouldnt have to go through all of this.
Thanks
Patti