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Discovery/Health : Fibromyalgia
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Recommend  Message 1 of 7 in Discussion 
From: MSN Nickname¤Penny¤2  (Original Message)Sent: 10/6/2006 2:31 AM


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Recommend  Message 2 of 7 in Discussion 
From: MSN NicknamePenny_farthing3Sent: 2/7/2007 6:47 PM
Your doctor will ask about your pain symptoms and then press on a series of anatomically-defined soft tissue body sites called “tender points.” There are 18 tender points on the body that will usually be highly sensitive to pressure in people with fibromyalgia as specified by the American College of Rheumatology criteria. People who do not have fibromyalgia are much less tender to pressure applied at these tender points.
overview tenderpoint diagram for fibromyalgia

What is Fibromyalgia?
Fibromyalgia is a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas of the neck, spine, shoulders, and hips called “tender points.” According to William Hennen, Ph.D., author of Fibromyalgia: A Nutritional Approach, fibromyalgia has been classified as a syndrome, not a disease. He explains that a disease is a condition with a clearly identifiable cause, while a syndrome is a set of symptoms that define the condition without a single causative agent upon which to place the blame.

What are the Symptoms of Fibromyalgia?
While the symptoms associated with Fibromyalgia fluctuate from person to person, there is one common symptom that all agree on - they ache all over. The pain can feel like a deep bone ache, pains and needles, or a stabbing or burning pain. Muscles may feel like they have been pulled or overworked. There are times this pain is mild, others when it is so severe that it becomes unbearable.

Along with pain, many Fibromyalgia sufferers report headaches, poor sleep, fatigue, depression, and irregular bowel habits. Many others simply describe their symptoms as "flu-like."


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Recommend  Message 3 of 7 in Discussion 
From: MSN NicknamePenny_farthing3Sent: 2/7/2007 6:48 PM
50 Fibro Signs
1. pain
2. fatigue
3. sleep disorder
4. morning stiffness
5. cognitive or memory impairment
6. irritable bowel
7. chronic headaches
8. TMJ syndrome
9. numbness and tingling sensation
l0. muscle twitching
11. skin sensitivities
12. dry eyes and mouth
13. dizziness
14. allergic symptoms
15. mitral valve prolapse
16. heel or arch pain 17. brain fatigue
18. painful periods
19. chest pains, noncardiac
20. depression
21. panic attacks
22. irritable bladder
23. multiple chemical sensitivities
24. joint hypermobility
25. suicidal
26. personality changes
27. lightheadedness
28. disequilibrium
29. severe muscle weakness
30. intolerance of bright lights
31. alteration of taste, smell, hearing
32. low frequency, sensorineural hearing loss
33. decreased painful sound threshold
34. ringing in the ears
35. exaggerated involuntary rapid eye movement
36. changes in visual acuity
37. intolerance of alcohol
38. enhancement of medication side effects
39. intolerance of previously tolerated medications
40. severe nasal and other allergies, possible sinus infections
41. weight change (gain)
42. muscle and joint aches
43. night sweats
44. heart palpitations
45. muscle spasms
46. Raynaud's-like symptoms
47. carpal tunnel syndrome
48. heartburn
49. difficulty swallowing
50. interstitial cystitis
 AGGRAVATING FACTORS: overexertion stress hormonal changes premenstrual anxiety changes in weather cold or drafty environment anger depression alcohol
POSSIBLE CAUSES FOR FMS: genetic neurochemical dysfunction hormonal imbalance virus infection accident or trauma nutritional deficiency

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Recommend  Message 4 of 7 in Discussion 
From: MSN NicknamePenny_farthing3Sent: 2/7/2007 6:51 PM

"Do you have Fibromyalgia? Do you find yourself scratching all the time? Do you have dry, itchy skin? Have you developed itchy skin rashes?

Maybe you have back itch? Or itching ears? Or maybe you sometimes even feel that horrible itching sensation all over - as if there are ants crawling all over your body…

Itching is just one of a number of skin complaints that Fibromyalgia sufferers can suffer from. And it's apparently one of the most common skin problems among Fibromyalgia sufferers.

Not only can itching be uncomfortable but it can also prevent you from getting the sleep you need at night. And sleep is especially important when you have Fibromyalgia because that's when your body heals and repairs itself. And as a Fibromyalgia sufferer, you've probably become increasingly aware that lack of good quality sleep can increase your pain and fatigue.

But Why On Earth Is Itching Such A Problem When You Have Fibromyalgia?

Well apparently, the medical profession aren't quite sure! But something they do know, is why this type of itching occurs…

You see, it's got to do with how your body interprets your pain signals and it's otherwise known as a sensory itch. The receptors in the outer layer of your skin are responsible for translating the amount of pressure it receives. These pressures can be translated into pain, for example. But when these receptors come across an unfamiliar pressure, they revert to the 'default signal'. And what's the default signal?

Itching!

"It's my theory that due to the dysregulation of neurotransmitters in FMS and/or the mechanical constriction of fluids around the Merkel's discs, we itch a lot more than most folks. Sometimes it is enough to drive us to distraction, and disrupt our meager amounts of sleep."

-- Devin Starlanyl, MD , What Allergists/ENTs Should Know about FMS/MPS --


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Recommend  Message 5 of 7 in Discussion 
From: MSN Nickname¤A_WEB_OF_SPUN_GUITARS¤Sent: 2/12/2007 5:26 PM
I've been doing a bit of research for another site concerning FMS, and it turns out that cocoa is thought to be very beneficial to sufferers.
 
Not milk chocolate as this is loaded with sugar, but high density dark chocolate (at least 70% cocoa or even better your own drinking chocolate made from cocoa and either unsweetened (try it spicy with cinnamon and cayenne pepper) or sweetened with Stevia.
 
Mixing the cocoa powder with either cream or coconut oil will soften the cocoa grains and make more dissolve in the fluid and leave less on the bottom of the cup.
 
There is also a certain amount of support for the possibility that FMS is actually caused by an organism called a mycoplasm.  If this is the case, regular use of a zapper will clear this out of your system and releive the symptoms conciderably.
 
A mycoplasma is partly a bacterium (brucellosis(from cows)) and partly a virus (the one that causes scrapie in sheep).  There are tests that will reveal it's presence but this organism is such a new thing that most doctors will not know about this.
 
Webby

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Recommend  Message 6 of 7 in Discussion 
From: MSN Nickname¤Penny¤2Sent: 3/2/2007 9:37 AM

LIVING WITH AN "INVISIBLE ILLNESS"
written May 2003
 
While from the outside I may seem normal,
It’s the part that you can’t see,
The constant pain and struggles within,
Are ever so apparent to me.
 
Although I may wear a smile,
Often times it's covering the tears,
Yet not tears because of sadness,
As it often may appear.
 
Don’t be too quick to judge though,
Because there is so much more than is known,
What may seem to look like one thing,
Just might turn to prove so wrong.
 
I may sometimes seem unfriendly,
Or too centered around self,
Because sometimes standing takes all I’ve got,
And there is just no energy left.
 
Sometimes my words may sound awkward,
My communication may not always convey,
My true inner thoughts and feelings,
Aren’t always expressed by what I say.
 
You may think that I’m not really listening,
Sometimes my face or speech may not show,
But I do hear every word you say,
I really want you to know.
 
The information doesn’t always process,
As quickly and as clear,
And sometimes it takes me longer,
To interpret what I hear.
 
I possibly miss many opportunities,
To offer needed love or support,
Because sometimes it just takes to long,
For my thoughts and words to sort.
 
So if my actions seem inappropriate,
In the things I say or do,
I hope that you can understand,
That it is not because of you.
 
There are times I get discouraged,
When forced to accept my inability--
It’s hard to admit my limitations,
And it leaves me feeling so guilty.
 
Yet every moment is a reminder
As I look all around,
The effort it takes just to get through the day,
Just picking my feet up off the ground.
 
I am not looking to find pity,
I am just attempting to explain,
That the person that you may often see,
And the real me aren’t exactly the same.
 
You may not see the peace and joy,
When you look upon my face,
But I know that each day I live,
Is because of God’s amazing grace.
 
It is hard to always be cheerful,
When the pain is so very real,
And not everyone can comprehend,
The extend of how I feel.
 
I don’t see it as all bad though,
Although I’d much rather it not be so,
But I know that if I must endure,
God will strengthen me as I go.
 
It may seem as if I take no pride
In the way that I look or dress,
However, there might be much more going on,
Inside of the big mess.
 
My home may not be nice and neat,
My bed not always made,
The laundry may not all be done,
And often it makes me ashamed.
 
But I must only do what I am able,
Each day I have to choose,
What is most important right then,
And the tasks I am able to lose.
 
All the plans and dreams I once held,
Now don’t seem quite so clear,
Yet I feel a peace within,
As my Lord keeps drawing me near.
 
To have a chronic illness,
Or a disability that one must bear,
Somehow puts life into perspective,
And helps to make us more aware.
 
I realize now that each day I live,
Is a gift from God above,
It is hard not to lean on Him,
Or to look to His great love.
 
I now can fully understand,
On my own, there is nothing I can do,
It is only be faith and prayer,
That I can make it through.
 
It may seem an exaggeration,
No one can always feel so bad,
But only those who have walked in these shoes,
Can appreciate the battles that I have had.
 
I see so many people less fortunate than me,
Don’t have to look very far,
There are so many suffering all around,
It doesn’t matter who you are.
 
Circumstances and illnesses can hit unexpectedly,
And you can never really be prepared,
It may be difficult to understand,
Leaving you vulnerable and feeling scared.
 
I must constantly guard my thoughts and mind,
As Satan always tries to bring me down,
He wants me to feel hopeless and unworthy,
And turn my smile into a frown.
 
It is hard not to get depressed,
When I see the burden my family must bare,
The fact I cannot always meet their needs,
No one could be more aware.
 
There are times I feel like giving up,
When I look too far ahead,
But I know if my loved ones were given the choice,
They would just choose to have me here instead.
 
There are so many ups and downs,
New challenges each day,
I must strive to keep my eyes on God,
So that I be not led astray.
 
It would be so difficult to cope,
Without God, my hope would all be gone,
Because through submitting to Him in prayer,
Is when my weaknesses are made strong.
 
So when you see the way I look,
When my insecurities are in view,
Base who I am on what’s inside,
Not by the things that I can do.
 
The greatest lesson that I have ever learned,
Is the reason that I am here on earth,
Is not to live for self and gain,
For in these things are not my worth.
 
God has a purpose for my life,
Although the details I may not see,
He still has it under control,
And is continually watching over me.
 
Maybe one day I will be well,
And my health He will restore,
But if that is not in God’s will,
I will still praise Him ever more.
 
If this suffering can bring honor to Him,
I will gladly accept the call,
Because of His great love for me,
He suffered and gave His all.
 
I have to believe that what I am going through now,
Will somehow work together for good,
And one day it will be revealed,
And all things will be understood.
 
While I still worry about what you think,
More the example that I may show,
I am learning so much more each day,
And this has really helped me to grow.

 

 

Assembled By Barb

©B&D's Backgrounds


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Recommend  Message 7 of 7 in Discussion 
From: MSN Nickname¤Penny¤2Sent: 4/14/2007 12:39 PM
FIBROMYALGIA AWARENESS DAY IS MAY 12TH

EDUCATE YOURSELF ABOUT THIS DEBILITATING ILLNESS

What is Fibromyalgia?
Fibromyalgia is caused by the brain not producing enough serotonin during sleep for the patient’s muscles to relax. This leads to severe muscle tension, which is very painful and muscle knots often form at the trigger points. Sleep is non-restorative, so the patient feels unrefreshed and often more tired in the morning than they felt when they went to bed.

While the symptoms associated with fibromyalgia vary from person to person, the one common symptom experienced by all sufferers is that they hurt all over. The pain can be a deep bone ache, pains and needles, a burning sensation, or most commonly a stabbing pain. Muscles may feel like they have been pulled or overworked, but usually they feel tense. The severity of the pain varies but it never goes away.

Fibromyalgia has been classified as a syndrome, not a disease. A disease is a condition with a clearly identifiable cause, whereas a syndrome is a set of symptoms that define the condition without a single causative agent upon which to place the blame.

Painful muscle knots form as a result of the tension. Even when a fibromyalgia sufferer is completely mentally relaxed, they are unable to make their muscles relax and will still be very stiff and tense.

How Common is Fibromyalgia?
Articles about fibromyalgia vary hugely. Some say that up to 5% of the population suffer from fibromyalgia, whereas others state that the figure is less than 1%. It primarily occurs in women of childbearing age, but children, the elderly, and men can also be affected.

What is the Cause of Fibromyalgia?
The cause of all fibromyalgia is unknown, but researchers have several theories about what the causes or triggers may be. Some fibromyalgia is triggered by an injury or trauma that affects the central nervous system. Fibromyalgia may be associated with changes in muscle metabolism, such as decreased blood flow, causing fatigue and decreased strength. Others believe the syndrome may be triggered by an infectious agent such as a virus in susceptible people, but no such agent has been identified. Lyme disease is a very important possible trigger to look into, because if it is not treated early on, lyme disease can cause fibromyalgia to develop. Mould toxicity and mercury poisoning have also been identified as the triggers of fibromyalgia in some people.

How Is Fibromyalgia Diagnosed?
Fibromyalgia is difficult to diagnose because many of the symptoms mimic those of other disorders, such as MS, ME and Lupus. A diagnosis of fibromyalgia is based on a history of chronic widespread pain in all four quadrants of the body for more than 3 months, in combination with tenderness in at least 11 of 18 specific tender point sites. People who do not have fibromyalgia are much less tender to pressure applied at these tender points.

How Is Fibromyalgia Treated?
There is no cure-all treatment for fibromyalgia. However, there are many treatments that can help a patient to control it and cope with it. Low-dose antidepressant medications taken at night increase serotonin production by the brain, improving quality of sleep and causing muscles to relax. Patients with fibromyalgia may benefit from a combination of exercise, medication, improvements in posture and relaxation. Magnesium supplements are often beneficial to fibromyalgia sufferers, because magnesium is a natural muscle relaxant.
..................................

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