Our Mission
We exist to ensure that any person who endures the pain and agony of RSD or related illnesses does not suffer needlessly because they do not have anyone that validates and understands their pain. By providing an avenue of support readily available to these individuals and their family and caregivers, we will enable them to vent frustrations, find support, encouragement and knowledge that they may gain the valuable tools necessary for proper and adequate pain treatment which will allow them to lead productive and meaningful lives. | | As you all have probably heard by now, MSN Groups are closing. This is a terrible kick in the butt for all of us. However, I have made the decision to do whatever I have to do to keep our group open in whatever way possible. The group will move to a different location as soon as I find a suitable place. The place that MSN has picked for use to go really sux. It is not a group for us as we know our group, it is simply a poor copy of Live Spaces where anyone on the web posts at any time if you want to have the group public and listed so people can find you. But please don't worry, I have some ideas in mind I just have to do some checking and I received a couple of emails in response to my letter that I posted yesterday on the forum that you read here on the General Board. If you will please all send me your current email address I will make certain to update you when I find that location. I am looking for a location now. During this transition I will not be posting any more medical information on this board but will be answering posts and the chat room will still be available. I do hope that none of you decide to jump ship, let's not panic. We have been and can be a strong group. I need to know that you are all still with me and I will continue to work as hard for you as I have been. If you wish to request special chats please do so as I will have my email box open to alert me that you've requested it. This is terrible as I feel MSN groups happen to be the best forum for us but we do have to roll with the flow. You all are my family and I would hate to lose any one of you. I am disgruntled and angry about this as they have often times left us out of the circle when they could have fared much better if they had managed it better. Their reasoning was they want to keep us up with the times and offer us the latest in technology. But they have actually removed all of the capabilities of what the groups offered and partnered with a site that offers nothing but a personal site page as far as I can see. I started a dummy site yesterday to get a feel for it and I have to be some technology master to attempt to build what we have here and lo and behold sometime during the night I have already received some spam and other junk! I am so un-impressed! You can send emails to me here anytime: We have a promotion site set up on yahoo that sits at the top of the listings already and that site is: RSD, Chronic Pain and Depression. The word gets out that way fairly well as I pay a promo company to do that. Fortunately I can take our chatroom with us and we can enter through my paid sites. One way or another I will find something that keeps us together. Love, Summer | | Back by Summer é HTML, Tiles, Info Copyright © 2008 RSD, Chronic Pain and Depression and Affiliates - Exclusive of Use - Page is not Linkware or Shareware - Updated October 2008 | |