I just want everyone to know that I am usually available. I am always online. I work a few days a week but I am online and when I am not in a meeting I am checking the posts. I am home by 3:00 and online until 4:00. My family eats dinner at 5:00 and then we follow up with family time every night until 6:30. Family time never changes. I am a firm believer in parents being involved with their children so this time is set aside strictly for them and we use it to talk about whatever.
If anyone needs to talk about anything please, do not hesitate. I am never too busy to chat. If for some reason I am not going to be online or not available I will give a heads up before that happens. I am online until 2:00 in the morning every day. Very rarely do I call it a day before that time. I do not sleep well and when I sleep it's only for 3 or 4 hours at most and then my 20 minute nap in the afternoon. I'm not here on Sunday mornings, I sing. I have a ministry also. That is what I do. I travel around Michigan as a Christian Vocalist. Sometimes, it takes me away for a weekend but I always know that well in advance so you all will know that too.
I try hard to not let RSD get me down. The first year it tried really hard and almost won. The second year it tried harder and put me in a wheelchair. The third year I fought back and took control of it. I'm not saying that it has not been tough because it has and still is. But it's not going to win. I have a lot more strength because of it. I have a lot more stamina and perseverence because of it and I have a lot more friends because of it. My faith is also stronger and deeper. I love harder and stronger. My commitments are deeper. My life finally seems to have purpose. When I was called upon the other day to approach the Senate Appropriations Committee for money to support the RSD Public Awareness Law in Michigan, I knew without question why my mother forced me to take all those English classes in high school (which I hated), why I took Honors English in college (who knew why then), and why I got RSD.
RSD is not just a condition I have. It is a crusade for me. It is my life. I eat, drink and breathe RSD. I have talked with thousands of people with RSD, on this support board and other boards, in community support groups, via telephone conferences and by mail. I have spoken with RSD sufferers around the world. The one goal I hope to achieve is that I can truly help people, support them so they never feel alone in their struggle as I did.
I don't play head games, I am always up front. If someone has a question I will answer it, to the best of my ability. If I don't know the answer I will say so and then find the answer and get back with you. I enjoy laughter, it heals and soothes many ailments. Laughter in the face of fear can make a coward appear brave. Laughter in the midst of sorrow can make some of the clouds disappear so the sunshine can come in and warm the soul. Laughter also releases endorphins which affect RSD. It has a healthy effect. We've know that for years about laughter. Just with RSD you just don't feel like laughing, but it's a natural medicine, and legal and free!
So please, if you want to chat don't hesitate. I am here. If you need to talk, I'm here. If you have any questions, I'll do my best. |
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