Hi,

 

I am a divrced mom of two beautiful girls Sarah (14) and Sydney (16).  Sarah is a straight A student and a cheerleader, she is in dance, plays piano and coronet.  Sydney is developmentally disabled, she lives at home with me and has home help come in every day to relieve me for several hours.  She is a sweet girl who really does try very hard to make me proud.  Sarah helps me out  quite a bit with her, takes her for walks, to the playground, to the zoo or whatever help I may need. I work in the resource room in the Head Start program at the local Public School.  During the summer months I run a Day Care Program at my home to assist the working mothers that have children who attend the same school so they are not burdened trying to find child care.  This arrangement helps me to have an income year round. 

 

I was just diagnose with RSD in May of this year (07) after tripping down the steps off the pavillion.  One step and twisted my leg and hip the wrong way and poof RSD, the burning, swelling and everlasting pain.  I have terrible skin lesions all the time, my leg and foot are always red and purple, I cannot wear a shoe at all on that foot, must be a soft slipper.  I have been giong to physical therapy 3 times a week but its not really doing any good it seems, I have remaind active and mobile but enduring the pain seems to take all I have.  I unfortunately, snap at my kids alot and have to do alot of apologizing which I hate.  They are such good girls and understand that its the pain talking not mommy.  Sarah is very good in the kitchen and will take over when I cannot, I dont like to out this burden on her but she does it willingly and graciously.

 

Someday I hope that there are better treatment optins available for the pain and agony of RSD.  That nobody else will have to suffer the way that I do or we all do now.  I really hope this happens in my liftetime, I am much too young to be this old.

 

Lisa