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Hi Christine,
I understand about what you say with the confusion! It is real hard to get used to thinking clearly with the pain. The best thing is to get a notepad and write everything down. Everyone I have talked to has to do that. If it was 11:30 pm when you wrote your note there it was 6:30 pm where me and Summer live so your 5 hours ahead of us! Just remember that. We change back our clocks in October from Daylight Savings time so then you will be 6 hours ahead of us until the Spring. Or do you all change your clocks like that too?
Sleeping is the absolute worst with the pain. Both Summer and me use Aspercream to ease the pain to sleep. We put it on liberally before trying to sleep and t really helps both of us. Also we tried some baby bath sleep formula with lavendar and that too works real well. Those are the two over the counter things that we have been using for a while that have been working great for us. It doesnt take all the pain away but it eases it enough to get relaxed. I have Rsd in my arms and legs from a long time ago and then with a diabetic coma I suffered I got neuropathy extremely bad in my hands and feet. I lost most use of my hands about 6 years ago. I can push and move things with my hands but cannot grasp things like a pencil or anything that requires fine motor control. Some days I can open a jar but not very often and never if it is closed very tight. I tried to drive but I am too slow with coordination to feel comfortable behind the wheel. I cannot walk at all and use transfer boards for everything I have no strength in my legs from 12 years of other conditions and disabilities. I didnt get RSD until after other conditions affected me that caused the initial disability.
I am glad that you found us while looking for information, apparently there must not be much to find where you are from! It is a surprise to me that this is the first you have contacted anyone else with RSD and that you have managed so long by yourself and not gone nuts from the pain! Gosh, that takes a strong soul to deal with it alone!!!
Good to hear from you! Hope to hear back soon!
( A little tip for you: To get off the moderated and wait posting, go to the rules pages, read and sign them, and then I can go change the settings to automatically accept your messages instead of you having to wait for a manager accept them. The box will still pop up but your message will go through without waiting!)
Hugz, Normalee |
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