So how and when should parents of children with AS explain the disorder? Is it always necessary to discuss it at all? To find answers to these questions, I interviewed Stephen Shore, an adult with Asperger syndrome as well as an international speaker and author.
Should Children with Asperger Syndrome Be Told About Their Diagnosis?
Many children with AS are included in typical classes, and can handle a wide range of typical activities.
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Some parents worry that, by telling a child about their own diagnosis, they're opening the door to trouble. Might the child lean on the diagnosis when challenges appear? Might their self-esteem suffer when they hear they have a diagnosable difference?
Stephen Shore says, "I recommend that the person on the spectrum be told as early as possible. There never should be a discrete disclosure session, but it should be something that's talked about all along. I was lucky because my parents used the word autism just like any other word. By age five, I knew I had autism."