5 February 2006
ONE CLICK ANNOUNCEMENT -
BORRELIOSIS
The One Click international pressure group founded in 2003 by Jane Bryant and Angela Kennedy was originally set up to assist sufferers of the neurological disease ME/CFS, classified as such by the World Health Organisation under ICD-10 G93.3, because our children had been diagnosed with this illness.
It has now been found that our children have borrelia spirochaetes - chronic Borreliosis. For information on the chronic Borreliosis issue, see here:
Lyme disease - ancient engine of an unrecognised borreliosis pandemic
http://www.theoneclickgroup.co.uk/documents/Borreliosis/Lyme%20disease,%20borreliosis%20pandemic.pdf
NHS National Library for Health - Diagnosing Lyme disease
http://www.clinicalanswers.nhs.uk/index.cfm?question=1076
Our children were originally misdiagnosed and have suffered greatly and needlessly for years. If our children had been properly diagnosed and treated appropriately at the beginning of their illness, things would have been very different for them and for us. Borreliosis is treatable. However, if the infection is allowed to proliferate unchecked and untreated for many years as is the case with our children, the treatment road is hard. The symptoms of chronic Borreliosis and ME/CFS are to all intents and purposes, the same.
The fact that our children have chronic Borreliosis means that they are excluded from being labelled and diagnosed as ME/CFS sufferers by the exclusion clauses of all the ME/CFS criteria currently in use, including the Oxford, Fukuda/CDC and Canadian criteria that prevent an ME/CFS diagnosis if a chronic infection is present.
Any sensible reader will know that the situation is far more complex than this and we will therefore continue, where appropriate, to advocate for all groups of people with organic disease adversely affected by the psychiatric paradigm conducted by psychiatrist Simon Wessely et al.
We would recommend that anybody interested in the issue of Borreliosis should visit the EuroLyme group at: http://health.groups.yahoo.com/group/EuroLyme
In light of this new chronic Borreliosis diagnosis in relation to our children, the One Click international pressure group will now widen its remit and will provide opposition to the psychiatric paradigm for patients suffering from diseases such as Gulf War Syndrome, Lyme disease/Borreliosis and ME/CFS. We will continue to carry breaking news, information and archive resources on these issues.
Jane Bryant & Angela Kennedy
The One Click Group
http://www.theoneclickgroup.co.uk/