Shana, you sound like you have checked out this disease, but here's an article that may help a little.
Read the link within this page, too.
I read about a woman once who had it and they built a special glass room in their house with separate ventilation so she could still see the birds. She was never able to go in the room with them again though. Her husband did all the bird care and she just watched.
Wish we knew of something that would cure it.
Annie