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Type 1 : LOWS
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Recommend  Message 1 of 13 in Discussion 
From: MSN NicknameStarSirona1  (Original Message)Sent: 10/26/2005 2:51 PM
Since I'm fairly new at all of this with my 13-yr old daughter being diagnosed a little over a month ago, I still am somewhat overwhelmed by all of this.  At any rate, I was under the impression that lows were caused by either too much insulin and/or not enough food.  Well, this morning my daughter had her first low (70) and the symptoms woke her up at 5 am.  She is still on 2 injections per day (a combo of NPH and Humalog).  For the first several weeks she always woke up with high numbers (200's), but for the past week (after an increase in dosages) she gradually woke up with lower numbers.  Spoke to her Nurse educator who lowered her PM units from 14 NPH to 12 NPH.  I am so confused by this disease. My daughter has to eat specific number of carbs at each meal and her bedtime snack is at 10 pm (30 carbs).  Why should she wake up with a low??  My question is -- does EVERY diabetic have lows??  I feel so stressed, scared and nervous about them.  Thankfully - the symptoms woke her up (sweating, nausea and racing heart).
~Ilona~


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Recommend  Message 2 of 13 in Discussion 
From: crackpotcyclopsSent: 10/26/2005 3:17 PM
Hi Ilona.I know it is alot to understand at first.In part some of your answer might be now that she is gaining control and setting a routine of eating her needs for insulin might change.Also if she did something out of the ordinary or an extra activity(something along that line) or excitement(stress good or bad) that can effect blood sugars.It is amazing at what will effect them.Sometimes even an extra ten minute walk will drive my numbers down or just visiting a friend and other times it will have no impact.It gets confusing even for us "old timers".You learn as you go.It is great to see she was able to tell, for her,she was going low.In my opion it is easier for a type1 person to go low than a type2 but that has more to do with treatment and using insulin rather than anything else.Miscalculate the insulin dose and you can go high or low,it just takes time and some experimenting to figure out.

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Recommend  Message 3 of 13 in Discussion 
From: sarahQSent: 10/26/2005 3:49 PM
Hi Ilona
Yes all type 1's have lows are body can react to any slight change to cause highs and lows you have to remember the body is not a machine so is not perfect.
 
Your daughter is also going through what is known as the honeymoon period so she will have lots of ups and downs for a little while please DO NOT worry about this just be aware of this and make sure your daughter always carries glucose/juice with her to treat the low.
She will also have ups and downs due to her teenage hormones changing (((((((((hugs))))))))
From reading your posts on the general board I get the impression your daughter will cope just fine with all this she sounds a real trooper.
S.
Type 1 for over 40 yrs

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Recommend  Message 4 of 13 in Discussion 
From: MSN Nicknamesafk1221Sent: 10/26/2005 3:52 PM
Hi Ilona
  I've been a T1 for 32 years, and I am constantly baffled by blood sugars.  Don't let it cause you (or your daughter) too much stress.  Have her keep up the testing, stay in touch with her doctor (for any adjustment in meds that he feels is necessary) and be patient.  A journal detailing her foods, meds, and activities would be helpful to her doctor in pinpointing how and where to make changes to her routine.  Unfortunately, as the control improves, lows do happen.  Make certain that she carries some form of quick sugar for such emergencies...like hard candy. tubes of cake frosting, or glucose tabs  And try to relax a little...OK?  sheryl

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Recommend  Message 5 of 13 in Discussion 
From: MSN NicknamekattladieSent: 10/31/2005 7:57 PM
Hi Ilona:
Try not to be too stressed out about this.  Things will improve.
I was diagnosed at age 8 and Im 41 now.  Yes, all diabetics have lows and highs.  A day in the life of a teen/pre teen is never the same.  Stress, activity, food, insulin, sleep, lack of sleep,hormones, and other things can cause lows.  Even illness or colds can affect the blood sugar.
Lowering her dosage at night may help.  Waking your daughter up (I know this is a paaain) in the middle of the night for a few nights in a row, to check her blood sugar might help until you can get her stabilized throughout the night & early morning hours. 
Hang in there...it seems tough, but it will get better.
Have a Great day
Diane

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Recommend  Message 6 of 13 in Discussion 
From: SoccerMomSent: 11/1/2005 10:30 PM
Before going to the pump, Evan used to eat 1/2 cup of Breyers icecream before bed. It worked wonderfully at staving off the overnight lows.

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Recommend  Message 7 of 13 in Discussion 
From: MSN NicknameType1MikeSent: 11/2/2005 8:14 PM
Ilona,
    I agree with everything everyone else said here -- all type 1's experience lows, but it will get better.  Don't give up. 
    I did want to mention something else though -- I don't want to confuse you or make things more complicated than they already are for you and yor daughter, but I feel I have to say something:
 
    I don't understand why any doctor would start someone off on NPH (I assume she mixes with some type of regular -- probably taking two mixed shots per day?)  Taking NPH, with all the concerns over peaks and durations, and overlapping doses seems like an archaic way to treat with insulin.  I think, from what I hear and read, that NPH is notorious for causing lows. 
 
     There is a much better way to treat with insulin: 
 
     Lantus and Novolog (or Humalog).  I have been Type 1 for 23 years now and I started on Lente and Regular -- 2 shots per day.  I experienced frequent lows (a couple of times a week or so) on the 2 shots per day, because once the insulin is injected, it works whether you need it or not.  A few years ago I switched to Lantus and Novolog.  I take the Lantus once a day at bedtime and I take Novolog just before each meal.  I adjust every Novolog shot for what I plan to eat and how active I am or planning to be.  It is much more flexible and can easily be adjusted to account for meals, activities and timing.  It doesn't matter what time I eat and I even have skipped meals on occassion, with no problems.  It is the best thing I ever did -- I now RARELY experience lows and my control is better than ever.  The Lantus and Novolog treatment is the next best thing to being on a pump, without having something plugged into you all the time. 
    If it was up to me, I'd say talk to your daughter's diabetes team about other options like Lantus and Novolog.  It means more shots per day, but it is a MUCH better option than NPH and Regular in my opinion.  I hope this doesn't make things more complicated for you, but I hope it will help your daughter in the long run.
 
Take care,
Type1Mike

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Recommend  Message 8 of 13 in Discussion 
From: MSN NicknamekattladieSent: 11/2/2005 11:51 PM
Just a question Mike.....Have you thought about going on an insulin pump?
 
I took several shots per day for many years.  Then, I went on a pump.  What a difference !  The Control, ease, freedom,  and normalcy of life is so much better with a pump.  My only regret is that I didnt do it sooner :)
Diane

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Recommend  Message 9 of 13 in Discussion 
From: MSN NicknameType1MikeSent: 11/3/2005 12:35 AM
Hi Diane,
 
    I have thought about it (going on the pump), but I opted not to at this point.  I don't mind the 4 or 5 shots per day I take now, and I really get creeped out about the thought of having something plugged into me at all times -- somehow taking shots makes me feel more free, since I don't have to be tethered to a machine at all times -- does that make any sense??  I'm sure I would get over it eventually, but I have really good control now with the Lantus and Novolog -- my last a1c was 6.1% -- fairly typical of my results -- I have been as low as 5.9% since I started on this regimen.  I know that once you switch to a pump you (almost) never go back, but I don't think a pump is the answer for me, at least not at this time.  Maybe some day, who knows.
 
Thanks,
Type1Mike

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Recommend  Message 10 of 13 in Discussion 
From: MSN NicknamekattladieSent: 11/3/2005 7:57 PM
Hi Mike :
Im glad that you are doing so well with the Lantus and Novolog.  Your A1Cs are excellent....Good job & Congrats !  
 
Before I started using a pump, I was also very creeped out by the thought of being hooked to a machine, especially at night while I slept !   Honestly,  I wouldnt lie to you....I did get used to it very quickly.  I even amazed myself at how easily it really was to get used to.  Now I dont give my pump a second thought, its like wearing socks or underwear, you just dont think about it.
The reason that I finally went on a pump was that I was having a lot of serious lows, up to 5 per week while taking shots.  I had a friend that was a type 1 for 44 years.  He had tried to talk me into going on a pump for three years, I just wasnt ready. He was the one person that really talked me into going on a pump and Im very happy that I did and Im thankful to him for talking me into it.  Unfortunately, I lost my close friend last year to diabetes related problems. He had suffered kidney failure before going on an insulin pump.  The pump actually helped him to live a more normal life for the remainder of time that he had left to live. 
Like you said, Maybe someday, who knows ? :)
Be Well,
Diane
ps:  I called the company yesterday to get info on the Omnipod but nobody has returned my calls yet.  Im in Michigan and I would like to know if it is available in my area also.

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Recommend  Message 11 of 13 in Discussion 
From: MSN NicknameType1MikeSent: 11/3/2005 9:09 PM
Hi Diane,
 
    Thanks for telling your pump background -- it helps to know I am not the only one with reservations about it -- I'm glad it worked out so well for you -- who knows I may give it a try someday. 
    I just read some references to the Omnipod the other day -- it sounds very intriguing to me -- no tubing and automatic insertion?!!!   I did a websearch and found their website -- from there you can enter your location and answer a few questions and they give you an instant answer online if the Omnipod is available in your area or not.  I am on their list to be notified when it becomes available in Southern California. 
 
Take care,
Type1Mike

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Recommend  Message 12 of 13 in Discussion 
From: MSN NicknamekattladieSent: 11/3/2005 11:39 PM
Hi Mike :
Thanks for the info.  Im going to check out their web site right now.  Hopefully I can find out if and when, the Omnipod becomes available in the Detroit area.
From what Ive read about the Omnipod, it sounds Amazing.  What a technologically- exciting time we live in.
Be Well,
Diane

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Recommend  Message 13 of 13 in Discussion 
From: csstrumeSent: 11/13/2005 5:08 PM
In response to your question, perhaps the best advice is to a) familiarize yourself with the symptoms of hypoglycemia (though not every low will have symptoms, so rely on testing rather than non-specific symptoms if at all possible) and b) try not to get too upset over it, because lows are a fact of life for patients with Type 1.  Below is an excerpt from an article published in the journal Diabetes Care:
 
Hypoglycemia is a familiar event for people with established (i.e., c-peptide–negative) Type 1 diabetes mellitus. (4,5) Those attempting to achieve some degree of glycemic control suffer untold numbers of episodes of asymptomatic hypoglycemia; plasma glucose concentrations may be <50 mg/dl 10% of the time. They suffer an average of two episodes of symptomatic hypoglycemia per week—thousands of such episodes over a lifetime—and episodes of severe, at least temporarily disabling, hypoglycemia approximately once a year. (1,10,11) Indeed, an estimated 2�?% of deaths of people with Type 1 diabetes have been attributed to hypoglycemia.
 
Overall, the frequency of hypoglycemia is substantially lower in Type 2 than in Type 1.  Event rates for severe iatrogenic hypoglycemia (requiring the assistance of another individual) are roughly tenfold lower in Type 2 than in Type 1, even during aggressive insulin therapy. (10,12�?5)
 

1.  The DCCT Research Group: The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. N Engl J Med 329:977�?86, 1993
4.  Cryer PE: Hypoglycemia: Pathophysiology, Diagnosis and Treatment. New York, Oxford University Press, 1997
5.  Cryer PE: Glucose homeostasis and hypoglycemia. In Williams Textbook of Endocrinology, 10th ed. Larsen PR, Kronenberg H, Melmed S, Polonsky K, Eds. Philadelphia, Pa., Harcourt Health Sciences. In press
10. MacLeod KM, Hepburn DA, Frier BM: Frequency and morbidity of severe hypoglycemia in insulin-treated diabetic patients. Diabetic Med 10:238�?45, 1993
11. Reichard P, Berglund B, Britz A, Cars I, Nilsson BY, Rosenqvist U: Intensified conventional insulin treatment retards the microvascular complications of insulin-dependent diabetes mellitus (IDDM): the Stockholm Diabetes Intervention Study (SDIS) after 5 years. J Intern Med 230:101�?08, 1991
12. Saudek CD, Duckworth WC, Giobbie-Hurder A, Hendersen WG, Henry RR, Kelley DE, Edelman SV, Zieve FJ, Adler RA, Anderson JW, Anderson RJ, Hamilton BP, Donner TW, Kirkman MS, Morgan NA, Department of Veterans Affairs Implantable Insulin Pump Study Group: Implantable insulin pump vs. multiple-dose insulin for non-insulin dependent diabetes mellitus: a randomized clinical trial. JAMA 276:1322�?327, 1996
13. Abaira C, Colwell JA, Nuttall FQ, Sawin CT, Nagel NJ, Comstock JP, Emanuele NV, Levin SR, Henderwon W, Lee HS: Veterans affairs cooperative study on glycemic control and complications in type II diabetes: results of the feasibility trial. Diabetes Care 18:1113�?123, 1995
14. Gerich JE: Hypoglycaemia and counterregulation in type 2 diabetes. Lancet 356:1946�?947, 2000
15. The UKPDS Research Group: Overview of 6 years of therapy of type II diabetes: a progressive disease. Diabetes 44:1249�?258, 1995

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