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Type 1 : Question for everyone
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Recommend  Message 4 of 12 in Discussion 
From: MSN Nicknamesafk1221  in response to Message 3Sent: 1/23/2008 11:45 AM
Some schools of thought say that the term "brittle" is outdated, and all diabetes CAN be controled.  Some doctors use the term instead of being willing to do ANYTHING necessary to work with more challenging cases.  They say, "Oh well, it's brittle diabetes...nothing to do" and throw up their hands in confusion and frustration.
You have to be really honest with yourself...and I am not trying to be hard on you.  I've had plenty of experience with my own "brittle diabetes" to recognize that it is NOT easy!  Are you truly being as compliant as you should?  This is not as clear as you may think.  Are you testing as often as necessary to monitor your sugars?  Are you making notes as to your moods and foods at the times of high readings?  Are you taking additioonal humalog, novolog, or fast acting analog insulin?  Are you even on the correct insulin for your diet and schedule?
Some doctors are not as savvy with control issues.  Perhaps you need a doctor more experienced in handling diabetes...not all endocrinologists are.  The endocrine system is composed of many glands, and not all endos specialize in the control of blood sugars.  Perhaps you need a different doctor to help your specific issues.
At 15 years old, I was termed "brittle."  Now I am 50.  I'm blind, lost an eye, had 4 kidney transpants, spent years on dialysis in between transplants, have wicked gastroparesis, neuropathy, blah blah...because I was "brittle."  What I was, was a non-compliant teenager, and a miserable adult...who didn't take good care of herself.  I pray you'll do MUCH better, and be more aware and careful.
HUGS!  sheryl