Sorry about that but the text had some strange tags in it.....

Hi girls �?here’s my story �?I’m pretty active in the group right now, but it’s mainly because I’m getting too frustrated so it’s really nice to be able to just let it out and know that the people who might read it, knows where I’m coming from and why I seem to be stuck in life. <o:p></o:p>

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I’m 26 and I started having my periods when I was 12. It’s always been painful �?or as some doctors insists on calling it “uncomfortable�? Funny how being uncomfortable can mean you’re not able to walk but have to get around on all four. <o:p></o:p>

When I was 20 I started on the birth control-pills. The first couple of years the worked fine but then I started bleeding when I wasn’t supposed to and the pain came back. I was put on my second brand of bc’s and had a lap. <o:p></o:p>

The lap didn’t show anything but no biopsies were taken. When I asked why the reply was that they would have had to take 20 samples and that was too much work! So back to my OB/GYN who recommended acupuncture and that I just learned to live with the pain �?some women just have unexplainable pain I was told. <o:p></o:p>

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Well �?I didn’t really feel ready for acupuncture just yet so I settled with some naproxen and ibuprofen. After a couple of months the pain got really bad again. I called my general doctor for a referral to a new GYN. He said no �?it would be a waist of taxpayer’s money to refer me again and that nothing was wrong with me so I should just forget it. I got really really P**** off!!!!!! So I demanded a new referral since I’m also a taxpayer! <o:p></o:p>

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Finally he caved in and I got the referral. Only the new GYN was really arrogant and just put me on my 3^rd brand of bc’s and told me to stop being such a hypochondriac �?nothing was wrong with me and a new lap was absolutely out of the question.<o:p></o:p>

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A week after I moved to another part of <st1:place w:st="on"><st1:City w:st="on">Copenhagen</st1:City></st1:place>, and had to get a new general doctor. The new doctor �?finally a woman took her time to listen to my story. She gave me a new referral and I was of to se OB/GYN number 3! <o:p></o:p>

The first visit went well �?I was put on the 4^th kind of bc and the ultrasound showed my uterus to be enlarged and almost looking as if it was sclerotic, so the doctor suspected adenomyoisis. <o:p></o:p>

Between my first and second visit I had been hospitalised with severe pain and my general doctor decided that I had had inflammation in the uterus and ovaries and gave me penicillin. The hospital had given me morphine for the pain. <o:p></o:p>

But at my second visit he had gotten charts from the first doctors I saw and he started the consultation by telling me he didn’t think anything was wrong with me �?I just needed physical therapy for tension and to watch my diet to avoid the pains when going to the bathroom. <o:p></o:p>

Well �?I decided to go se a physical therapist in order to prove the OB/GYN wrong! And as I suspected the therapist proclaimed after 8 sessions that he could do nothing to help me get rid of the pains. During this time I also tried acupuncture to really show them that I was taking this thing serious and that it wasn’t in my head.<o:p></o:p>

So back to the OB/GYN. He admitted that adenomyosis still had to be suspected but since the physical therapy had worked so well and the bc’s kept the pain away �?I was cured!! <o:p></o:p>

I have no idea where he got the information that I was pain free because I told him how much pain medication I had been taking and I had a calendar in which I had written down the days with pain and how severe the pain had been.<o:p></o:p>

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So back to the general doctor one more time. She gave me a new referral. <o:p></o:p>

This time I was really nervous about going to see yet another doctor. But he turned out to be kind, able to listen and actually know something about endometriosis. <o:p></o:p>

He started me on my 5^th bc-pill however. But after 1½ month with no effect he suggested nafaralin. I agreed to try and after 3 weeks the pain was starting to go away. However I got other side effects but I continued to take nafaralin for 3 months. <o:p></o:p>

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I stopped a bit more than 3 weeks ago and I’m on bc-pills once again. The pain has come back and right now I’m waiting to have my period. My OB/GYN has referred me to one of 2 national hospitals for women with severe endometriosis and I’m going there for the first time on May 4^th. It’s very likely that they will sign me up for another lap.<o:p></o:p>

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On my last ultrasound the OB/GYN told me that my uterus was 6 mm thick and it should only be 1-2 mm which is a sign of adenomyosis, the right ovary has some liquids which was a sign of cysts and also the right ovary is slightly deform suggesting that it’s grown into my uterus. <o:p></o:p>

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For the moment I’m applying for a kind of social security check that you can get here in DK if you have a severe illness that prevents you from working while studying. I haven’t even been able to study as hard as I need to in order to pass my exams in June so I’m likely to get it. That would be a huge stress-reliever. <o:p></o:p>

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My mother and 3 aunts on my mother’s side all have endo! Also I’ve learned that endo can cause the uterus to lean backwards which mine does, that endo can be the reason why I always feel so tired and catches colds easily and that the pain I feel when going to the bathroom also can have something to do with it.<o:p></o:p>

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So �?that’s my story till now! But I haven’t given up yet! I deserve better quality of life than this, so I can be a better future wife and a better student �?and totally - a happier person!

 

If you've managed to read the entire story I salute you - and if yu've just skipped to the end I understand - I didn't expect it to be this long - sorry.