Programs & Services

NORD’s Patient Assistance Programs

Since 1987, NORD has administered programs to assist uninsured or under-insured individuals in securing life-saving or life-sustaining medications. In addition to the estimated 50 million Americans who have no health insurance, an increasing number of insured individuals have policies that do not reimburse for prescription drugs. Others have policies with low annual caps on prescription drug expenditures.

NORD works closely with humanitarian-minded pharmaceutical and biotechnology companies to ensure that certain vital medications are available to those individuals whose income is too high to qualify for Medicaid but too low to pay for their prescribed medications. NORD’s programs have set the standards for fairness, equity, and unbiased eligibility. The NORD programs have gained respect from the patient communities, pharmaceutical companies, healthcare professionals, government officials, and the public. Participants have assurance that NORD protects their confidentiality. There is no conflict of interest with respect to NORD’s eligibility decisions.

Currently, NORD administers programs for:

• Acorda Therapeutics
  Zanaflex Capsules™ Uninsured Individual Program
  (Tizanidine Hydrochloride)
  Conditions:
  Spasticity
  Contact:
  Reimbursement Assistance Program at 1-800-464-0097
  
  
• ATON PHARMA
  ATON PHARMA Patient Assistance Program
  Cuprimine, Demser, Edecrin, Lacrisert, Mephyton, Syprine
  Conditions:
  Wilson’s Disease, Rheumatoid Arthritis, Cystinuria, pheochromocytoma, edema associated with congestive heart failure, cirrhosis of the liver, renal disease, idiopathic edema, lymphedema; dry eye syndromes, vitamin k deficiency
  Contact:
  The ATON Call Center toll-free at 1-877-286-6549
  
  
• BioMarin Pharmaceuticals
  Naglazyme Premium/Co-Payment Assistance Program
  (galsulfase)
  Conditions:
  Mucopolysaccharidosis Type VI (Maroteaux-Lamy Syndrome)
  Contact:
  1-800-999-6673
  
  
• Cephalon, Inc.
  TRISENOX® Patient Assistance Program
  (arsenic trioxide) injection
  Conditions:
  relapsed or refractory acute promyelocytic Leukemia (APL), Multiple Myeloma
  Contact:
  Cephalon Oncology Reimbursement Expertise, 1-866-261-7730
  
  
• Cephalon, Inc.
  PROVIGIL® Assistance Program
  (modafinil)
  Conditions:
  Narcolepsy
  Contact:
  the Provigil® Reimbursement Assistance Hotline at 1-800-675-8415
  
  
• Medtronic, Inc.
  ITB® Therapy Patient Assistance Program
  Lioresal® Intrathecal (baclofen injection)
  Conditions:
  Severe spasticity
  Contact:
  NORD at 1-800-999-6673 e-mail [email protected]
  
  
• Jazz Pharmaceutical, Inc.
  XYREM® Patient Assistance Program
  (sodium oxybate)
  Conditions:
  Narcolepsy with cataplexy
  Contact:
  Xyrem Success Program at 1-866-997-3688
  
  
• Questcor Pharmaceuticals, Inc.
  ACTHAR® GEL Patient Assistance Program
  (ACTH)
  Conditions:
  Infantile spasms, multiple sclerosis, Crohns disease, Adrenal insufficiency, etc.
  Contact:
  NORD at 1-800-459-7599 e-mail [email protected]
  
  
• Rare Disease Therapeutics, Inc.
  CYSTADANE® Patient Assistance Program
  (betaine anhydrous for oral solution)
  Conditions:
  Homocystinuria
  Contact:
  NORD at 1-800-999-6673 e-mail [email protected]
  
  
• Rare Disease Therapeutics, Inc.
  ORFADIN® Patient Assistance Program
  (nitisinone)
  Conditions:
  Hereditary Tyrosinemia Type I
  Contact:
  NovaFactor at 1-888-454-8860
  
  
• Sanofi - Aventis
  RILUTEK® Patient Assistance Program
  (riluzole)
  Conditions:
  Amyotrophic lateral sclerosis
  Contact:
  NORD at 1-800-459-7599 or e-mail [email protected]
  
  
• Sanofi Pasteur, Inc.
  Imovax®/Imogam® Patient Assistance Program
  (Human Diploid Cell Vaccine)
  Conditions:
  Rabies Vaccine
  Contact:
  NORD at 1-877-798-8716 or e-mail [email protected]
  
  
• Sanofi Pasteur, Inc.
  TheraCys® Patient Assistance Program
  [BCG Live (Intravesical)]
  Aventis Pasteur, Inc.
  Conditions:
  Bladder Cancer Therapy
  Contact:
  NORD at 1-877-798-8716 or e-mail [email protected]
  
  
• Sanofi Pasteur, Inc.
  MENOMUNE® Patient Assistance Program
  (meningococcal vaccine)
  Conditions:
  Meningitis
  Contact:
  NORD at 1-877-798-8716 or e-mail [email protected]
  
  
• Sigma-tau Pharmaceuticals, Inc.
  CARNITOR® Drug Assistance Program
  (L-Carnitine or levo carnitine)
  Conditions:
  Primary systemic carnitine deficiency, dialysis, chronic fatigue syndrome (CFS), several rare metabolic disorders
  Contact:
  NORD at 1-800-999-6673 e-mail [email protected]
  
  
• Sigma-tau Pharmaceuticals, Inc.
  MATULANE® Drug Assistance Program
  (procarbazine hydrochloride)
  Conditions:
  Hodgkins disease (Stage III and IV) and certain other lymphomas
  Contact:
  NORD at 1-800-999-6673 e-mail [email protected]
  
  
• Teva Neuroscience, Inc.
  COPAXONE® Medication Assistance Program
  (glatiramer acetate, for injection)
  Conditions:
  Multiple sclerosis (relapsing-remitting)
  Contact:
  Shared Solutions at 1-800-887-8100
  
  
• Teva Pharmaceuticals Inc. USA
  Tev-Tropin® Patient Assistance Program
  Tev-Tropin® Co-Payment Assistance Program
  Somatropin (rDNAorigin) for injection
  Conditions:
  growth failure due to inadequate secretion of normal endogenous growth hormone
  Contact:
  Growth Solutions at 1-866-838-8767
  
  
• Ucyclyd Pharma, Inc.
  BUPHENYL®
  (sodium phenylbuterate)
  Conditions:
  Urea cycle disorders
  Contact:
  Ucyclyd Reimbursement Hotline at 1-800-711-0811
  
  
• NORD MS Premium /Co-Payment Assistance Program
  Conditions:
  Multiple Sclerosis (MS)
  Contact:
  1-800-634-7207
  
  
• NORD Cervical Dystonia Co-Payment Assistance Program
  Conditions:
  Cervical Dystonia (Spasmodic Torticollis)
  Contact:
  1-800-999-6673 x 1311
  
  
• NORD CPP Premium /Co-Payment Assistance Program
  Conditions:
  Chronic Plaque Psoriasis (CPP)
  Contact:
  1-800-634-7207
  
  
• NORD Intrathecal Therapy for Pain Management Co-Payment Assistance Program
  Conditions:
  Intrathecal Therapy for Pain Management
  Contact:
  1-888-774-2581
  
  
• NORD Advanced Renal Cell Carcinoma Co-Payment Assistance Program
  Conditions:
  Advanced Renal Cell Carcinoma
  Contact:
  1-866-828-8902
  
  
• NORD Hodgkins Lymphoma Co-Payment Assistance Program
  Conditions:
  Hodgkins Lymphoma
  Contact:
  1-800-999-6673
  
  
• NORD Chronic Non-Infectious Uveitis Co-Payment Assistance Fund
  Conditions:
  Non-infectious uveitis
  Contact:
  1-800-999-6673
  
  
• NORD Hunter Syndrome (MPS II) Premium/Co-Payment Assistance Program
  Conditions:
  Hunter Syndrome (MPS II)
  Contact:
  1-800-999-6673
  
  
• NORD MPS VI Premium/Co-Payment Assistance Program
  Conditions:
  mucopolysaccharidosis Type VI (Maroteaux-Lamy Syndrome)
  Contact:
  1-800-999-6673
  
  
• NORD PNH Premium/Co-Payment Assistance Program
  Conditions:
  Paroxysmal Nocturnal Hemoglobinuria
  Contact: 1-800-999-6673

NORD also administers Early Access Programs for investigational new drugs (INDs) under the Food and Drug Administration's approved "Treatment-IND" programs that allow for a limited number of individuals to receive certain investigational drugs prior to FDA marketing approval.

For information about the programs listed on this page, please use the contact information associated with that particular program or write to: [email protected].