Hi my nic name is wildfire431, real name is Debby. I live in Australia, was born in the USA was brought out in 1972 when I was just going on to 12 yrs old. I have 4 kids grown now thank goodness. I have had fibro/ME/CFS for 15 yrs now and am on a lot of meds to control the pain. Yes I want to give up at times, but I have my family to live for. The pain is bad and I have the best Dr I could hope for. He never not listens tome, he sees me and knows when I am having a bad day, he asks me things what I want not what he wants, as he said to me one time, you have the illness no one but you know what you need to cope with this and he has just been the tops for me. I did have a carer, but she was always telling me do this take this and you get better, do more stop complaining, until one day her husband was made reduant from work. She was the sick one then, she has had more operations than I have with this illness I have had for 15 yrs. Now I don't tell her I hurt , I have isolated myself to home, never go far and never alone. I am afraid I will fall or burn myself as I get black outs a lot now. my daughter is 15 and goes to school yr 11 now and plans to do University to teach music, she plays clarinet and piano. Tell me people what do I need to do to get people stop saying it in my head or you are druggie and you want pity, when all I really want is understanding.
Thanks for listening to me
wildfire431