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Fibro Awareness : Top 10 Fibro Things You Want Norms To Know
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From: MSN Nicknameswtanjul2007  (Original Message)Sent: 2/6/2007 3:51 PM
 {{{{{Family}}}}}  I know we don't all have fibro but even if you have a chronic pain syndrome or are a care-giver I'm sure you have noticed how we get treated....maybe if we could get enough stuff to make this a good and complete (as possible) we might be able to do something with it!
                                                      *H*&*P*        love juls
 
ps....maybe it could make a difference.....is there anything you can add??
**It ticks me off when I go into a public restroom it never fails that someone with kids is in the "handicap" bathroom and I have to go urgently!! My wheelchair won't fit into the regular stalls!! **
***It also ticks me off when there is one handicap space left and another car pulls in and I see a family or a bunch of teens unload out of the car and no one with them is handicap but they sure are quick to put that placard in their window!! ***
 
1.) just because I look normal doesn't mean I am
2.) it's awful that friends and family pull away because they don't know how to help or fix this problem
3.) it's worse to have so many ignorant doctors making so much money to make us feel worse
4.) that SSD pays us pennys to live on--no wonder some on retirement and/or disability eat cat and dog food....we don't get enough to even cover rent let alone utilities-food-soap-toilet paper
5.) that some of us have high costing meds and that medicare--even with the bill that Bush signed--isn't going to pay for those meds
6.) that real hugs are wonderful but when you pat me on the back it feels like I am being slammed with hammer
7.) I'd like to yell and scream at all of those people who don't-won't work!!! I'd give up almost everything to go back to work!!!
8.) that while I am in my wheel chair---it seems like people who are walking go out of their way not to look at me--not to have eye contact
9.) that I am still a human being--that I still have feelings
10.) that fibro is as debilitating as Lupus-MS-AS-ALS-CFS- and so on....we deserve the same attention--the same amount of research and attention!!!!
 


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     re: Top 10 Fibro Things You Want Norms To Know   MSN NicknameNiddy_Bum  4/14/2007 1:00 AM