1.) just because I look normal doesn't mean I am Who said you looked normal?
2.) it's awful that friends and family pull away because they don't know how to help or fix this problem or are they telling your how to get more exercise, and don't eat that piece of cake or you'll get worse?
3.) it's worse to have so many ignorant doctors making so much money to make us feel worse or don't give a toss about our symptoms and say it's all in our head.
4.) that SSD pays us pennys to live on--no wonder some on retirement and/or disability eat cat and dog food....we don't get enough to even cover rent let alone utilities-food-soap-toilet paper and then they don't report the poison in the cat/dog food.
5.) that some of us have high costing meds and that medicare--even with the bill that Bush signed--isn't going to pay for those meds but they can waste so much on a stupid war and not do anything for those suffering and are helpless to better their lives
6.) that real hugs are wonderful but when you pat me on the back it feels like I am being slammed with hammer and then they get offended, and you lose even more support.
7.) I'd like to yell and scream at all of those people who don't-won't work!!! I'd give up almost everything to go back to work!!!to regain the dignity in our lives
8.) that while I am in my wheel chair---it seems like people who are walking go out of their way not to look at me--not to have eye contact like you've lost your intelligence
9.) that I am still a human being--that I still have feelings except that you feel too much, too strong, too painful and I'm not even getting the the body
10.) that fibro is as debilitating as Lupus-MS-AS-ALS-CFS- and so on....we deserve the same attention--the same amount of research and attention!!!!Until it affects politicians themselves it doesn't matter, it's not the "in" disease yet
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