I'm actually grateful for the days of mild pain, because I know how painful it can be. So my heart goes out to you. I'm so sorry that you are having a hard time. I do know what it's like for me.
I have to use a cane now, and I used to enjoy long walks. I just can't go out the front door now, it's like a major operation. A shower or bath is difficult, as well.
I think to myself that I'm glad it's not something like MS or Parkinsons. I have to think that way in order to get through some days. I do get some remission, and then I'm really grateful for the good days.