On Thu, Oct 2, 2008 at 2:31 PM, Smiling Fibros <[email protected]> wrote:

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Update - Prayers Needed

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From: dini747 Hi Dollface, I can definately understand what you're going through. I think alot of us have had issues with our meds before. It seems the Dr's really don't know how to "treat" a patient who needs help, so doing what you're doing is certainly an avenue that I think alot of people take in order to get off of strong medications. It really should be supervised by a trained Dr. You have the love and support from your family and from this group, as well, which I think makes it alot easier to do things and get through the rough times. My Dr's currently watch the meds I take, as well, and I've heard the lectures before myself. I think there's alot of controversy out there about meds and what is a good amount to take and what isn't. I think that's great that you want to stop taking the meds that you listed, since those seem like pretty heavy duty ones to me. Withdrawl isn't pleasant, but you CAN get through it. I've been through it a few times myself and have tried different strategies to cut down on my meds. The symptoms aren't pleasant but once you realize that it's your body adjusting to the changes and  if you keep a positive mind about it and take it one day at a time, it CAN be done. I know some of the symptoms are fatigue, headaches, dizziness, weakness, brain fog, sweating, chills and the inability to sleep, just to name a few, but I think those are the main ones that seem to cause us to panic. Hopefully, they will give you a special diet to follow and provide cognitive therapy where you are, along with lots of support. I think that is key to succeeding, as well. You'll probably feel uncomfortable for a few days, but after that you will feel your body being able to adjust to the changes. Just DON'T push yourself and get frustrated by how you're feeling. You also might experience IBS while your body "detoxifies", but it's important to have the right diet to follow so you can rid your body of toxins properly. Get lots of liquids into you while doing it as well and get lots of rest. Remember to do your breathing exercises and keep your focus on calming things. Say stuff like "I am calm!" "I can do this!" If you're spiritual that helps, as well. Go into it with a positive mind and try not to think of what it "might" be like there. Getting support from your friends by phone or online in messenger or by email helps alot, as well. Just know that everyone is sending positive vibes your way and rooting for you! Try not to focus on how "bad" you feel but instead say positive things to yourself EVERY DAY, as much as you can. When you feel nasty symptoms, do your breathing and calming exercises and visualization. I always picture myself in some tropical resort somewhere. If you have a picture you can take to help you to focus on that visualization then take it with you if you're allowed. Keep in touch with us here if you can, by computer. Post to the boards if you like, if that helps you, as well. I think alot of us would be interested in knowing how facilities like that work so we can all learn a lesson from it. So, if you feel like posting a daily "I feel like" or "Today this happened" type of post, feel free to give your input. I think that also helps us to release alot of tension and helps us to relax, as well! Good luck and know that I'm with you in spirit rooting you on all of the way! Let us know when you're back home again, too, ok? Dini  (P.S. Keep your focus on the rainbow! There's always good things at the end of it!)

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Thank you so much!!

 

I also wanted to say ... because I re-read my message and it was sounded as if all facilities were just horrible places to be...some are...we know that but its not as bad as I probably made it sound.  Going to an unfamiliar place in an extremely vulnerable state is always hard.  My first facility was in beautiful sunny San Diego.  There were no cell phones, no internet, but you could call home with a calling card every day during certain hours and they would take messages for you.  The entire facility (which was a part of a hospital but situated elswhere) looked like a home with two beds to a room, a double sided dresser and mirror, decent size closet, bedside tables and windows with a view of the beutiful city.  Our entire facility consisted of less than 20 people at a time so it was very very small.  Our day began at 7:30a for meds if you needed them, breakfast from 7-8am (but it was very flexible...they kitchen was open 24 7 just as it would be in your house with snacks, etc. (which is why I gained 20lbs in 2 f'n weeks there!) and group began at 9, lectures were at about 11 meds around the same time, breaks...SMOKE BREAKS (no smoking AT ALL on the hospital grounds where I'm going....one more habit to kick), lunch and clean up, more lectures and movies, study time, 3pm everyday was recreation...they made you go out in town on recreation everyday out in town...we called it the druggy buggy....kinda funny but it was fun.   then liesure, dinner and nightly aa or na meetings, then free time until our 9pm wrap up ... free time from 9-11 and you could watch movies related to recovery like 28 days with sandra bullock (but they had a few other non-recovery movies they allowed.....they had a back yard with a ping pong table but no mandator physical fitness or nutrition besides at 20 mintues saturday walk.  it was a very RELAXED atmosphere and they were very gentle with you.

 

Everywhere is different so there are extrememes to every situation...I mean if you have the money...you can get a nice place that will give you nutrition therapy, physical therapy, internet access, allow cell phones, massage, etc. but the other extemes are rigid highly structured intensive therapy but i really don't have anything to go on but my own experience and now....my own fears.  I will let everyone know how it goes and keep in touch until I go.  I know there is someone out there suffering from the same thing as me so for those suffering in silence.....and wish to get help with either abuse of medications, a desire to stop but are unable to do so on your own, desire to go natural but withdrawal won't allow you to stop..whatever the case may be....I advise you to research your options allowed with your insurance or lack thereof...reseach their detox methods, call and ask about their program, visit the facility if you can....and talk to as many people as you can in recovery....there are places on the net where you find sober places to socialize and talk to recovering people even though you may not fancy yourself that type of person .... and you may not be but you can get some wonderful insight even if you are not "one of them"...lol. 

 

I thank EVERYONE for their support and honestly it has calmed my nerves for the time being.  I wish I knew exactly when and where I was going but it is not in my hands anymore....probably never was.  My God will lead me to the place that I need to be and I am beginning to trust that.  I am no bible thumper, don't go to church and question many things about organized religion but I do believe in my God and I am beginning to trust that he will not give me more than I can handle.  I just hope and pray that he gives me the strength to recognize that I am stronger than I think and to push myself. 

 

I don't know how the fibro/chronic pain is going to factor in this but I am going to push through it....I am so afraid to be in pain.  Even with all the meds....I went to two stores and the park with my daughter and I was SO EXHAUSTED and in so much pain that all I could do is lay down with her when she went to bed at 7pm...didn't mean to fall asleep and I was supposed to to go to an N.A. meeting tonigth but didn't wake up in time.  I don't know how the exhaustion will come into play.....mornings are VERY VERY VERY bad for me.  I am not a morning person to begin with...now add Fibro, endo and my general routine.....I am just afraid of that 6:15 wake up call and military terms that I don't understand.  ...but whatever...lol.  Apparently they are not as strict as you would think.....they give you 1 1/2 hours for physical therapy and you just do what you do during that time so perhaps I can go at my own pace....my biggest fear is the pain and how they will address it and if we come to the point where they say...yes....you REALLY do need to be on meds....I'm afraid I can't withstand the pain because I hear it can take up to 2 years to repair damage done by pain killers/blockers because the chemicals have changed your reception to pain...but I guess I need to hold on to "just for today" and stay positive.  so that is what I am trying to do.

 

again...thank you for your care and concern and I will keep everyone up to day...thank you for support. 

 

dollface

On Thu, Oct 2, 2008 at 7:43 PM, jsr4711 <[email protected]> wrote:

	New Message on Smiling Fibros

Update - Prayers Needed

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From: jsr4711  Jacki
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