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General : Anyone else share this odd fibro symptom?
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 Message 1 of 11 in Discussion 
From: bettafan  (Original Message)Sent: 11/16/2008 5:03 PM
Hi ladies!  In talking with several other online friends I have made over the years with fibro, I've noticed just about all of them say how horrible their sinuses are this time of year.  Of course, I know quite a few people that have sinus trouble that do NOT have fibro.  But, one thing that happens to me, and seems to happen only if the sinuses AND the fibro are bad at the same time, is that the roof of my mouth seems to swell and become VERY tender.  It makes eating and drinking difficult, and even brushing my teeth is very painful.  The doctors all seem to be stumped, and none has ever really offered any advice at all.  Most just recommend otc nasal medications if anything.  The sinuses can be almost 100% better in a few days, but the mouth isn't.  THAT doesn't seem to improve until the fibro does!  Does this happen to any of you, and if yes, what can I do for relief?  Thanks and HUGS, Betta


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Reply
 Message 2 of 11 in Discussion 
From: MSN NicknameSmile-Mom-Sent: 11/16/2008 9:26 PM
I am checking this out for you!  Sorry about the other confusing message in your other site :(  Betta have you told others here about your friends site? 

Reply
 Message 3 of 11 in Discussion 
From: MSN Nicknamedini747Sent: 11/17/2008 2:34 AM
Hi Betta,
That's an interesting question that I think alot of us get. I researched the topic a bit and came up with this:
Night-time stuffiness moves to whichever side of your head is on your pillow if you are lying on your side. Gravity drains the congestion to the lower side. This condition goes along with postnasal drip and, often, a constantly runny nose. This is worsened further by the head-forward posture and congestion of normal fluid passages caused by TrPs. Check for a TrP slightly above the outer edge of your upper lip and toward your ear. This TrP is a cutaneous facial muscle, the sygomaticus major, and it can add to sinus pain. It may also cause a restriction of serveral inches of your jaw opening.
A small massager in the sinus areas helps to loosen thick mucus and promotes a sneeze. You can cleanse your throat and nasopharyngeal area using very warm salt water as a nose wash. Try doing this procedure just before bedtime. If you suspect the area is raw, use less salt and a lower temperature for the water. (Use about 1/2 cup of water and add one gentle shake of salt). Lean your head back as far as you can and use a dropper with a small amount of the salt-water mixture. Insert the dropper inside your nostril, with your head bent back as far as you can. Rinse the lining of your nose with the dropper pressed againts the top of the inside of the nostril. Then spit out the water and blow your nose gently. Repeat the process in the other nostril, then repeat each side with the dropper pressed against the bottom of the inside of the nostrils.
Gargling with salt water may also help clear away thick secretions and prevent further irritation. If you do this procedure every night before going to bed, you may find your nose and throat becomes less sensitive to the salt and the temperature. DO NOT use the massager or salt-water nose drops if you suspect an infection, since you don't want to spread the germs.
As for the roof of the mouth swelling, trouble with swallowing may develop due to the presence of digastric TrPs. This leads to head and neck pain and a "swollen glands" feeling. Researchers confirmed that their patients with facial pain and abnormal swallowing had digastric hyperactivity in every case. It hurts to work digastric TrPs! Start with warm, moist packs on your throat for a few minutes. Then put your elbows on the table and rest your thumbs on either side of your jaw, under your chin. You are trying to get a release of the myofacia, by "milking" away excess fluid. Use a gentle backwards motion from the base of your chin, stroking or pressing up to the base of your ear. Start gently and listen to your body. It will tell you how much pressure to use. Gentle bodywork may help you to deal with these TrPs.

Reply
 Message 4 of 11 in Discussion 
From: MSN NicknameSmile-Mom-Sent: 11/17/2008 3:56 PM
Great info Dini :)
I also found a few things too, medications, Cellulitis, Sinusitis (sinus infections!!!!!!!), and I stopped at sinus infections because here is what I found :)
 
Sinusitis may be diagnosed when a person has two or more symptoms and/or the presence of thick, green or yellow nasal discharge.

What Are the Signs and Symptoms of Chronic Sinusitis?

People with chronic sinusitis may have the following symptoms for 8 weeks or more:

  • Facial congestion/fullness (includes inside of mouth)
  • A nasal obstruction/blockage
  • Pus in the nasal cavity
  • Fever
  • Nasal discharge/discolored postnasal drainage

Additional symptoms may include:

  • Headaches
  • Bad breath
  • Fatigue
  • Dental pain (Betta, when you have the soreness are your teeth sensitive?)
PLEASE let us know if you have all the info you need or want or if you have more information to share :)
 
Thank you for asking :)

Reply
 Message 5 of 11 in Discussion 
From: MSN Nicknamejsr4711Sent: 11/17/2008 6:26 PM
I have suffered from chronic sinusitis since I was a kid.... it's gotten worse as I get older.  It does get so bad that my teeth hurt badly enough I can't eat.  Decongestants help relieve some of the pressure, but don't really take care of all of the congestion.  The newer nasal sprays work better than the pills though.

Reply
 Message 6 of 11 in Discussion 
From: bettafanSent: 11/18/2008 6:02 AM
I have a nasal irrigation kit.  Basically, it's just a squeeze bottle that you fill with lukewarm distilled water and a packet of salt and baking soda combined.   It has helped the sinuses, but the oral tenderness is still there.  The teeth are a bit more sensitive, but not outright painful.  And yes, I did notice the presence of what seemed to be swollen glands this time, although that is not common with this for me.  The doctor told me the nasal irrigation was better than most medications, because medications seem to work less than 20% of the time, and they feel the majority of those cases would have resolved themselves without any medications at all, plus the irrigation system is affordable and without side effects.  I think the information on TrP's is especially helpful, Dini, so thank you so much for doing the research on that!!  This could explain why I have an increase of head and neck pain at this time that I may be interpreting as a worsening of fibro symptoms when it is related to the TrP's.  However, I AM experiencing increased fibro pain at this time in the lower back and hips.  It's probably one of those fibro things where it cycles...the fibro makes something worse, and that in turn makes the fibro worse.
 
I very much appreciate everyone's input and help on this!!
 
MEGA HUGS,
Betta Sue
 
 

Reply
 Message 7 of 11 in Discussion 
From: MSN NicknameSmile-Mom-Sent: 11/18/2008 4:58 PM
Do you need or want more info?  So glad we could help :)  This is what we are here for isn't it :) ) :) :):)

Reply
 Message 8 of 11 in Discussion 
From: bettafanSent: 11/19/2008 11:40 PM
I have been trying the heat and massage on the throat and jaw area, mentioned in Dini's post.  The mouth is a bit better, but you can see the glands as well as feel them, and I have a mild earache in both ears...moreso in the right ear, which was also the side of the mouth that was worse.  However, it's the LEFT gland and jawline that is more tender.  Go figure!  I'm still using the nasal irrigation, and the sinuses are probably 75-80% better than they were.  Any other information will be very much appreciated!   I know many people that have a lot of sinus and "swollen gland" issues this time of year...both with and without fibro.  While some talk of their teeth and gums hurting, most don't mention the pain and swelling in the roof of their mouths like I experience.  Still, some of this may be very helpful to them, too, and I can pass it along!
 
Thanks and HUGS!!
Betta Sue

Reply
 Message 9 of 11 in Discussion 
From: MSN NicknameSunflower996Sent: 11/20/2008 5:31 PM
Betta If your glands are swollen you have an infection. It will not go away without an antbiotic. Go see your Dr. or it will stay with you forever.
Sunflower

Reply
 Message 10 of 11 in Discussion 
From: MSN Nicknamejsr4711Sent: 11/20/2008 10:33 PM
Believe it or not, swollen/sore glands are a symptom of fibro.  Please get checked out by the doctor to make sure it's not an infection.
Jacki

Reply
 Message 11 of 11 in Discussion 
From: bettafanSent: 11/20/2008 10:59 PM
They are easing up some, finally.  Thanks for your concern!  Yes, I have heard it is a fibro symptom as well, and they are almost always slightly tender and swollen for me.  It was worse for about a week. I'm concerned about taking antibiotics because I did two strong courses of them just a few months back, when I had cellulitis in my shoulder, plus I was using a prescription strength topical antibiotic solution at the same time.  I'm afraid that's too much for my system in a short time.  I feel the flu and pneumonia shots may have lowered my resistance to getting ill in the first place, but may have prevented me from getting sicker than I did.  I need to call the doctor anyway, because I have some questions about herbal remedies.  I was at the chiropractor Monday, and there was a brochure recommending a combination of valerian, passion flower, and magnesium as a natural analgesic and muscle relaxant.  I need to find out if it's safe to take these supplements, but I would probably want to do each one individually instead of taking a combination supplement.  
 
Betta Sue 

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