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Medical ??'s : Why Do People Not Understand
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 Message 1 of 5 in Discussion 
From: MSN Nicknamewildfire431  (Original Message)Sent: 12/4/2004 9:43 AM
I am wondering am I the only one around who gets told get over it and to get a life. I am at the stage of no return right now and feel strongly upset, I wrote letters of good by to my children today and just cried thinking why me and why i have to suffer this pain all day and night . Thanks for this room and maybe I will find answers one day.
Bye for now
Debby


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Reply
 Message 2 of 5 in Discussion 
From: MSN Nicknamehellen22Sent: 12/4/2004 12:11 PM

People don't understand unless there in our situation,then its a very diffrent matter. Doctors seem to be good at saying that Get over it get a life. It makes me so mad. wHAT They forget is we're in mourning for our old self back.




 Helen

>From: "wildfire431" <[email protected]> >Reply-To: "Smiling Fibros" <[email protected]> >To: "Smiling Fibros" <[email protected]> >Subject: Why Do People Not Understand >Date: Sat, 4 Dec 2004 01:43:23 -0800 > >----------------------------------------------------------- > >New Message on Smiling Fibros > >----------------------------------------------------------- >From: wildfire431 >Message 1 in Discussion > >I am wondering am I the only one around who gets told get over it and to get a life. I am at the stage of no return right now and feel strongly upset, I wrote letters of good by to my children today and just cried thinking why me and why i have to suffer this pain all day and night . Thanks for this room and maybe I will find answers one day. Bye for now Debby > >----------------------------------------------------------- > >To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. >http://groups.msn.com/smilingfibros/_emailsettings.msnw > >Need help? If you've forgotten your password, please go to Passport Member Services. >http://groups.msn.com/_passportredir.msnw?ppmprop=help > >For other questions or feedback, go to our Contact Us page. >http://groups.msn.com/contact > >If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. >mailto:[email protected]


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Reply
 Message 3 of 5 in Discussion 
From: MSN NicknameSmilingSuperSmileSent: 12/7/2004 9:13 PM
We all have our ups and downs, I know I just went through a really low point.  I think it takes a lot of work to accept the amount of change we must accept.  Letting go of all the dreams you had for your life is so hard.  I had a long period of time where I could see nothing beyond the day.  All of my dreams were gone.  The life I thought I would have was gone.  Drs and friends and family all looked up fibro and told me "It's not that bad, just decide you can do it and you will" It was really hard for me to not onlyt let go of my dreams but also the people that couldn't understand.  But now that I have I have nothing but time for the new dreams, adventures, and people in my life :)  I may do them different but I will do them :)
Mega hugs :)

Reply
 Message 4 of 5 in Discussion 
From: MSN Nicknamehellen22Sent: 12/7/2004 11:26 PM

you will do them, if your determend enough anythings possible. People don't want to understand, because they don't have the time or the patience. We accept who we are and what we can't do,so should others.




 Helen

>From: "SmilingSuperSmile" <[email protected]> >Reply-To: "Smiling Fibros" <[email protected]> >To: "Smiling Fibros" <[email protected]> >Subject: Re: Why Do People Not Understand >Date: Tue, 7 Dec 2004 13:13:22 -0800 > >----------------------------------------------------------- > >New Message on Smiling Fibros > >----------------------------------------------------------- >From: SmilingSuperSmile >Message 3 in Discussion > >We all have our ups and downs, I know I just went through a really low point. I think it takes a lot of work to accept the amount of change we must accept. Letting go of all the dreams you had for your life is so hard. I had a long period of time where I could see nothing beyond the day. All of my dreams were gone. The life I thought I would have was gone. Drs and friends and family all looked up fibro and told me "It's not that bad, just decide you can do it and you will" It was really hard for me to not onlyt let go of my dreams but also the people that couldn't understand. But now that I have I have nothing but time for the new dreams, adventures, and people in my life :) I may do them different but I will do them :) Mega hugs :) > >----------------------------------------------------------- > >To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. >http://groups.msn.com/smilingfibros/_emailsettings.msnw > >Need help? If you've forgotten your password, please go to Passport Member Services. >http://groups.msn.com/_passportredir.msnw?ppmprop=help > >For other questions or feedback, go to our Contact Us page. >http://groups.msn.com/contact > >If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. >mailto:[email protected]


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Reply
 Message 5 of 5 in Discussion 
From: MSN NicknamespiritofsmilingSent: 3/2/2005 9:20 PM
Letters of goodbye? I hope you don't feel you need to do yourself in. If you ever do, please know that things can...no, WILL get better. Whether it is understanding for them, or feeling better for you.
 
And please, if you ever need immediate help, we have a list of hotlines on this site.
 
You are definitely not alone. Even in the best of circumstances, it is hard for people to understand fibro and all the crap involved with it. What is sad is when people don't try to understand. Part of living with fibro and similar problems is having a good support system. You need to find that, even if it can't be your own family.
 
I am sorry if I sound harsh. My friend's mother killed herself--she was dealing with fibro and other things and just couldn't handle it anymore. But her family and friends didn't even know that she was having such a hard time.
 
Someday your family will understand. I truly believe that. I hope it is soon. And I hope you can find some ways to feel better soon too.
 
Please keep looking and hoping!

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