Smiling Fibros

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You're about 3 months from being approved for dissability. You're lawyer has an inside scoop that you're gonna win for absolute sure. You'll be set for life and never work again. Nor CAN you work again or you'll lose your benefits.

Suddenly, you discover that there's a cure for fibro, or whatever else you have. All your friends are being healed. It's not widespread knowledge yet, so you can still win your case. But if you undergo the treatment, you'll lose the case.

What do you do? Live in excriciating pain for 3 months just for the money? Keep complaining and asking for ideas to help you, knowing you won't try them because you'll lose your precious case? Win your case and then undergo treatment and still collect disability benefits even though you're no longer disabled? Never work again even though you have so much to offer?

Or.....undergo treatment, lose your case, win no money and know that may mean going back to work and earn a living again?

Hmm, I think it has a lot to do with how many things were tried, was the last one the end of the rope? As for all my friends being cured, wonderful. I think if the case is a short term one or a ssd claim, or a lawsuit against the company that increased the fibro it is still an individual choice. Even it the cure is found that helps all fibros that is great but the lost wages and past pain are entiled to a settlement. Everyone has a limit to what they can tolerate, this person could be tired of things that helped everyone hasn't helped them. I think each person needs to do whatever they need to do so they can always look themselves in the mirror. They should also be able to make the choice that they want with out being judged.

I don't think anyone would turn down a sure cure.

In the letter to normals I think it says it all

-If you want to suggest a cure to me, don't .It's not because I don't appreciate the thought, and it's not because I don’t want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped , all people with FMS/MPS then we'd know about it. This is not a drug company conspiracy, there is worldwide networking (both on and off the Internet) between people with FMS/MPS, if something worked we would know.

-If after reading that, you still want to suggest a cure, then do it, but don’t expect me to rush out and try it. I'll take what you said and discuss it with my doctor.

ok, then why ask on a SUPPORT group for help with depression, or help with terrible flares? Yes, I think that part of the letter is bull. If I had said that about walking, I'd be in a wheelchair today. What you're saying is,

"I've given up hope.

"My friends though well intentioned, don't know what they're talking about."

I don't believe there's help out there.

Dr's still are my best hope."

My question again, WHY ASK US FOR HELP IF YOU DON'T WANT IT?

I would----wait 3 months and get my case approved. Try the "cure"-if it worked I would wait and make sure I stayed cured-say 6 months or whatever then I would tell them I dont want or need their money anymore. Hugs-Jazzy

I would accept my disability as permanent, take the money, get the cure, and use the money to further help others in great need, human and animal.

Niddy,you say...then why ask on a SUPPORT group for help with depression, or help with terrible flares? Well because it is a support group! It is not up to us to judge anyones actions - only to support them in whatever actions they take. We are here to support each other-we can offer suggestions, advice or whatever we feel. We can ask for suggestions, advice, or whatever we feel. This doesn't mean we have to act upon the advice or suggestions. This doesn't mean we should be judged if we don't act upon them. We should be able to count on this family in whatever way support is needed. Niddy girl if you decide that you want to eat cat poop coz it works for you ( cat poop was the first thing that came to mind-go figure) then I am going to support you in that-but I aint gonna eat it!!!!!!!!!! I will even feed it to ya!!! Because I support you and I love you. Hugs-Jazzy

Yeah yeah...support others' choices even though I dissagree. It seems I'm always being tested on that one. Sorry gang. It's just hard to see the ones I love suffer so much.

I meant......I'm sorry for being such a donkey (but the other word)!

You are not a Donkey!! hehehehe I too am tested on that one Niddy. (((((((((((Niddy girl)))))))))))))

but jazzy...cat poop???? think i'm that nutsy? ok don't answer that!

Now a whole new topic :)

How nutsy do you think our Niddy is :)

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