I was diagnosed with Fibro this past June and knew very little about it, only that I felt like an open seeping wound on two shakey legs. Seeking info on this dis/ease I joined another board and found a family feel there, lots of support, began to care for many of the people. Learned so much that helped me educate my Dr Befuddled Don'tKnow.
A young lady in a very dangerous situation posted her fears and the abuse that was already going on from her father in law, where they were forced to live. Vulnerable and unable to defend herself she was scared and didn't know what to do.
I do a little online advocacy though a battered womens shelter, and could speak from experience also. I pulled no punches and pothers on the board also offered her useful (and some not so useful) advice.
The moderators deleted the thread, because of the not so useful statements. I tried to start another thread, for future reference, in case this situation presented again, where we could all gather our suggestions and have them in one spot. After all take away, strength, create weakness in a human, add an overwhelming dose of pain, and all consuming fatigue and you might as well light them up with a neon sign for "Charming" predators!
The moderators took offense, kicked me off the board. I was lost, felt as if my family was ripped away. As isolated as I am, this sent my mind and heart into a tailspin. I had tried to help save a life, and for my effort my heart was ground up.
I knew I needed support, contact with the outside world and others who understood. YUp,did search box on MSN, saw the word SMILING. That's exactly what I needed! To Be Smiling!
I'm home, though tears and chuckles, agony and gales of laughter, in just a few short weeks, I have grown so close here I am sorry I didn't find "Us" first.
I couldn't be happy without SmilingFibros, and I don't want to live without this family in my everyday.