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| | From: sweet_maryn2 (Original Message) | Sent: 5/22/2005 3:20 AM |
Hi everybody I am Sweet Mary, I use to be surfmary, but Smile says I am Sweet hence my name change. I was diagnosed with fibro 3 years ago this August. I am married to MedicBob (who is a member here), we have been married 10 years. I stay at home with my daughters Elizabeth 7 and Maria 5. I also have a little boy named Robert who is in heaven, he died when he was 9 1/2 weeks old. I love being a bold, I haven't been around much because life has really been happening to my family. I am so proud to be part of this wonderful family and look forward to getting to know everyone better. Please feel free to ask me anything, and if I can do anything for you please let me know. I will post more about myself in the days to come. God Bless Love and Hugs, Sweet Mary |
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Hi (((((((((((((((((((Family)))))))))))))))))))))))))) Well it has been really crazy around my house, I fell out of bed LOL hurt my arm but it is on the mend. My Mom, brother and his family moved back to Michigan from California and at the same time my Dad got ill and is in the hospital. My Dad is going to be discharged today Thank God! Maria has started her physical thearapy and we will be going to Childrens Hospital 2x a week. Elizabeth cannot wait for school to be out for the summer! Bob is going with the flow and as always is so supportive. I will post more later. God Bless Love and Hugs, |
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Mary, hi hun, that is great about your dad, and i hope he moves closer to you, great about maria too, and all the kids i think are looking forward to getting out of school!!! Thank God, for the Bob's of the world, i have one too only his name is Todd. Very supportive and going with the flow! Just wanted to let you know i am reading these and thinking about you. huggers, danielle |
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((((((((((((((((((((((family))))))))))))))))))))))))) So just wanted to share a little more about myself. A year ago I was diagnosed with Ehler's Danlos Syndrome, what a shock that was!!! My little Maria has it as well it is a genetic disorder. It effects how we produce the cologen in our body. This will cause overelaticity in our ligaments. We have to watch and make sure that Maria's heart valves grow properly and she is in physical thearapy as well. Dislocation is also common in people with type 3 EDS. Well just a little something more about me to share with all of you. Ask any questions you may have and I will do my best to answer. God Bless Love and Mega Hugs, |
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I have never heard of that before now. That is interesting, care to share a link where we could learn more about you and maria? im hugging you both right now! huggers, danielle |
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