http://www.arpkd.org Home Page
This is moderated by pediatric Nehprologists and parents of children w/ pediatric neph problems.
Super site and highly recommended
http://groups.yahoo.com/subscribe/ARPKD This is a wonderfully supportive email discussions group. **Highly reccomended**
http://www.gdef.org/pkd/arpkd.html Genetic Disease Education Site
http://www.airlifeline.org/a1/servlet/visit Lifeline airfairs**must see**
http://www.npath.org/ National Patient Transport Site
http://www.nahhh.org/ National Hospitality Homes Site
http://www.rmhc.org/ National Ronald McDonald Site
http://www.radquiz.com/Sonogram.htm Very educational & informational site
This is a beautiful site!
Dawn a mom of a child who passed away makes scrape books for her child sammie. And you can learn how too. She is kind and compassionate and this site is really very special.