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                            **ARPKD**

                          

                         

 http://www.arpkd.org   Home Page

 

http://cnserver0.nkf.med.ualberta.ca/nephkids/ 

This is moderated by pediatric Nehprologists and parents of children w/ pediatric neph problems.
Super site and highly recommended
 

 http://groups.yahoo.com/subscribe/ARPKD   This is a wonderfully supportive email discussions group. **Highly reccomended**

 http://www.pkdcharity.co.uk/arpkdinfo.htm

 http://www.humgen.rwth-aachen.de/

 http://www.peds.umn.edu/residents/3/m/99-00/4/sld084.htm

 http://leedsdna.info/tests/ARPKD.htm

 http://www.gdef.org/pkd/arpkd.html  Genetic Disease Education Site

 http://www.airlifeline.org/a1/servlet/visit  Lifeline airfairs**must see**

 http://www.npath.org/  National Patient Transport Site

 http://www.nahhh.org/  National Hospitality Homes Site

 http://www.rmhc.org/  National Ronald McDonald Site

 http://www.radquiz.com/Sonogram.htm Very educational & informational site

                        

                        

http://www.rememberingyourbaby.com/index.htm 

 This is a beautiful site!

Dawn a mom of a child who passed away makes scrape books for her child sammie. And you can learn how too. She is kind and compassionate and this site is really very special.