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| | | From: Joseph (Original Message) | Sent: 12/5/2008 3:58 PM |
6+ years post tx from PKD. Went to my quarterly labs this past Wednesday. My creatinine was up from my 6 year average of 1.9 to 2.75. Potassium was in my “normal�?range of 4 point something. The scheduled me to re-take the labs again on Thursday. They were concerned about the creatinine. My red blood cells indicated that I was not dehydrated, but some of the other indicators did. I drank 200 oz of water to make sure I was not dehydrated before labs again. I only ate a turkey lunch sized Banquet frozen lunch, two Manwiches, a hand full of dark chocolate M&M’s, and two Quaker peanut butter oatmeal bars between labs.
They called me back again yesterday. My creatinine was down a little to 2.5, but my Potassium was 5.8. I gained 3lbs in water weight, so I don’t think I was dehydrated (my fingers were swollen a little from the feel of my wedding band, but my ankles were fine). I don’t think what I ate supports the potassium increase. They want to take labs for a third time on Monday. My Neph added a urine test to rule out any infection going on (I have had infected epididymus bouts in the past).
Am I crazy to be thinking there is something going on with my tx? I have never had any rejection episodes, so have been spoiled in that regard.
By the way, the tx nurses and doc told me it would be fine to do the UPS part time work under normal circumstances. I have decided against pushing it with this going on.
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| | From:  Gena739 | Sent: 12/5/2008 8:59 PM |
Joseph, Good for you..6 + yrs with your kidney!! As far as Pottasium.. im sure it was something you ate, I used to worry at the number 6 , when I was on dialysis, I have a transplant now.. As far as your 2.5, I dropped lower then that with a bad UTi and it took me 1 week to get it back to .9 ,which i am now.. well the last number was .8! Gena  |
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| | | From: pkdLin | Sent: 12/6/2008 1:22 PM |
| I"m a bit confused as to whether you are talking about tx. (treatment) or txp. (transplant). Lin |
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| | | From: Gena739 | Sent: 12/6/2008 1:37 PM |
Lin.. are you talking about my Post? The last two lines Im sorry I didnt specify that was my Creatnine numbers  Post Transplant! Gena  |
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Lin, I think around here most people are using "tx" to mean transplant instead of treatment. It seems treatment is usually spelled out or "treat" is used. Alas now I much feed my cat a "treat" because I swear they even know how to read it on a computer screen! Joseph, Can't speak for your creatinine, but you sure had a lot of sodium between your labs! That alone will wreak havoc with some of your other electrolyte levels as your body works hard to equalize the sodium levels. Get the UA done and ensure they check not only for white blood cells but also for the nitrites (shows occult infections). Hopefully this is just a one time increase in your creatinine levels and all will be blissfully normal from here on out. Just keep us posted! Best wishes, Ruth |
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| | | From: pkdLin | Sent: 12/6/2008 8:55 PM |
| Sorry, in medical "speak" tx. is treatment and txp. is transplant so it confuses me when people use tx. Lin. |
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Lin, I know....but we tend to use layman's terms here. Until you brought up the difference a few months ago between tx and txp I didn't even know the difference!
Thanks for putting up with us laypeople! Hugs, Ruth |
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Joseph, Ruth was right, if what you listed is your normal diet it is exceedingly high in sodium. I don't keep things like Manwich in my home so I can't speak on the sodium in it but I'll bet its very high. salt, or sodium, doesn't only come in a shaker. all processed foods, including Banquet frozen lunches, are usually dangerously high in sodium for people with compromised kidneys. sure its easy to pop a meal into an oven, or open a can. lots easier than preparing food from scratch but is it worth going on dialysis for? there are lots of foods you can prepare from scratch without doing a lot of work. if you or your wife are willing to do so and need help there are plenty of us who have taken the steps. there are cookbooks for low sodium diets. |
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