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|  0 recommendations | Message 1 of 8 in Discussion |
| | (Original Message) | Sent: 1/27/2008 11:51 PM |
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Hi,
My name is Kathy. I am also new to this site. I was diagnosed with PKD about 17 years ago and totally ran from it until my kidney function was at 15 %. I just had a peritoneal catheter placed and am awaiting starting dialysis in about 2 weeks. I also just need friends that I can talk this over with. Sometimes I am so scared.
Kathy
In a message dated 01/27/08 20:26:23 Eastern Standard Time, [email protected] writes:
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----------------------------------------------------------- New Message on Polycystic Kidney disease chat & community ----------------------------------------------------------- From: tool19630 Message 1 in Discussion I should have done this way before today.The chance to talk to anybody that has been and are going through what we are going through on a daily basis is great!My name is Rick.I am about 12 years in(I was diagnosed in 96 )I have pretty much been through it all.5 years of kidney failure,5 years of dialysis and 2 plus years of transplant life.35 surgeries later,I would just like to talk to any of yall who would enjoy too.Please e-mail @ [email protected] ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PolycysticKidneydiseasechatcommunity/_emailsettingsmsnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto: [email protected]
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| | From:  PKDmom | Sent: 1/29/2008 2:53 AM |
Hi Tool and Kathy, I just wanted to welcome you both to the very best message board on the net!! You will find wonderful, kind folks here who either have PKD or have loved ones who have this disease. There is so much great information here so make sure you poke around the different links to the left and make sure you visit the "General" board. There are several posts every day about PKD and life, in general. The "members" here range from those just diagnosed to those who are on dialysis or have already had transplants. Please know that you are not alone. You will find lots of great information and support here. Please feel free to ask any questions you have. |
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From: [email protected]
To: [email protected]
Subject: Re: new to this site (not so new to pkd)
Date: Mon, 28 Jan 2008 18:53:17 -0800
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new to this site (not so new to pkd)
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| From: PKDmom |
Hi Tool and Kathy,
I just wanted to welcome you both to the very best message board on the net!! You will find wonderful, kind folks here who either have PKD or have loved ones who have this disease. There is so much great information here so make sure you poke around the different links to the left and make sure you visit the "General" board. There are several posts every day about PKD and life, in general. The "members" here range from those just diagnosed to those who are on dialysis or have already had transplants.
Please know that you are not alone. You will find lots of great information and support here. Please feel free to ask any questions you have.
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| | | From: pkdLin | Sent: 1/29/2008 12:35 PM |
| Welcome to the site! I'm so glad you finally made it here. Aside from being able to meet others who have pkd, their famiies and caregivers, you can also take advantage of the pkd links in the left hand column of opening page. When the site was first formed a handfull of members pooled together all their favorite links and placed them there for all to read and gain knowledge. Lin. (manager) |
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welcome Tool and Kathy. Kathy, you are scared of the unknown, Tool, you have been through a lot of it and are still here. fear of dialysis is a whole lot worse than the reality, it will make you feel better. please be aware if you are producing normal amounts of urine you do not need fluid removal unless you are retaining water. you may need your doctor's help to make sure dialysis staff are not dehydrating you. that can cause severe cramping and drops in blood pressure which will leave you feeling weak and shaky. its too bad you came here so late in your diagnosis and have to face dialysis without a lot of knowledge about it. feel free to ask all the questions you have. |
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Welcome Tool! I have just become familiar with this site also. I have learned more in just one month than the two years I have been going to doctors and such. Any how, They are not diagnosing, but I have learned that experience is second to none. The other reply said to poke around, they are right! I looked way back for different discussion and have learned learned! Susan |
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That is good to know. I am producing normal amounts of urine and function is at 15%. I am hoping to be successful at peritoneal. Right now I am just "flushing"
Kathy
In a message dated 01/29/08 08:15:40 Eastern Standard Time, [email protected] writes:
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----------------------------------------------------------- New Message on Polycystic Kidney disease chat & community ----------------------------------------------------------- From: spiderwoman Message 6 in Discussion welcome Tool and Kathy. Kathy, you are scared of the unknown, Tool, you have been through a lot of it and are still here. fear of dialysis is a whole lot worse than the reality, it will make you feel better. please be aware if you are producing normal amounts of urine you do not need fluid removal unless you are retaining water. you may need your doctor's help to make sure dialysis staff are not dehydrating you. that can cause severe cramping and drops in blood pressure which will leave you feeling weak and shaky. its too bad you came here so late in your diagnosis and have to face dialysis without a lot of knowledge about it. feel free to ask all the questions you have. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PolycysticKidneydiseasechatcommunity/_emailsettingsmsnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto: [email protected]
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