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Introductions : New to the board
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(3 recommendations so far)

Message 1 of 6 in Discussion

From:

CoachRichie6 (Original Message)

Sent: 3/3/2008 10:08 PM

Hello!

I'm Richie Perl, a Certified Profesional (Life) Coach and a Certified Trainer of Neuro-Linguistic Programming.

I have PKD. I received a kidney transplant, donated by my wife on Jan. 6, 1998.

I was on dialysis for 4 months before the transplant.

I have always been interested in the non-medical aspects of the disease.

Things like how we relate to our bodies when our kidneys fail.

How our families relate to us.

How we deal with the various health practitioners we encounter.

How we "recharge our batteries" when we need to just "get off the world."

I'm interested how you all handle these rarely-discussed aspects of PKD.

Please accept this invitation to help us help each other cope with the "human" side!

I'm 6o years old, and was first diagnosed with PKD in 1970, so, I've been around a few years!

Here's hoping for some responses.

If there is anything I can assist you with from my experiences, please contact me!

Peace!

Coach Richie

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Message 2 of 6 in Discussion

From: Bridget

Sent: 3/11/2008 6:25 PM

Hello there Richie , I am so sorry your post got missed some how. I look forward to talking with you more soon.

Please keep posting and getting to know our pkd family here. I am sure you will enjoy them all a great deal.

Bridget*

Message 3 of 6 in Discussion

From:

pkdLin

Sent: 3/11/2008 7:22 PM

Hi B, There were two posts and the other one was answered. Lin.

(1 recommendation so far)

Message 4 of 6 in Discussion

From:

Gena739

Sent: 3/11/2008 9:42 PM

Hi ..Richie. .Welcome to this Board.. Good for you.you've had your new kidney for many yrs. Are you still on the same Immune drugs? Did they lessen the drugs?

How's your wife doing? That was a brave thing for what she did.. my sister just got a kidney from a friend of her husbands. .and is doing well..she worrys alot what to eat in the beginning but that''' change ! I had my new kidney for 3 yrs. now!

I started to wean off the Prednisone. (My choice) Dr. agreed ! Still the same creatnine.. so im pretty lucky!

Gena

Message 5 of 6 in Discussion

From:

CoachRichie6

Sent: 3/12/2008 11:55 PM

Hi, Gena!

Thanks for replying!

My wife is doing great!

She's just on some mild BP meds and Actonel.

As for me, I've been pretty much stable for 7-8 years.

I'm still on some prednisone.

My neph basically says in effect, "If it ain't broke, don't fix it!"

I'm on Fosamax and may probably need cataract surgery in the middle future.

Otherwise, onward and upward!

Peace!

Coach Richie

(1 recommendation so far)

Message 6 of 6 in Discussion

From:

pkdLin

Sent: 3/13/2008 3:34 AM

Hi Coach, Welcome. I thought I had seen and responded to another post from you; I must be going batty lol
My name is Lin. and I've been on dialysis for almost 7 yrs... I've known about the pkd dx. for many years and my father also had pkd.. however he died when I was very young and I didn't know he had pkd.. until many years later. I'm single and have two grown sons one of which has pkd.. I'm looking forward to having you here. Lin.

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