Hi to all...I am new on these message boards....I had my transplant in 2001...things are going great...I found out I had Polycistic Kidney Disease in 1978 after having 2 kidney infections in 2 weeks.My Dr. thought he had better check to see why..and that's what he found...Don't really know how long I've had it...noone else in my family has it,so said it had to be spontaneous mutation...I was only on dialysis for one month before my transplant..I had a double cousin (our mothers were sisters and our dads were brothers) donate her kidney....I have had no rejection episodes,which I have heard that alot of people do...pretty lucky I guess...After reading alot of peoples stories on other message boards I count myself pretty lucky cause I have had no pain with my native kidneys..I still have both of them...I was told I had hundreds of cysts on them so you would think I would have had some problems with them...also they really aren't that large...After 6 yrs on immunosupressive drugs I am having some side effects...high cholesterol,fluid in my feet where I can't get my shoes on, I have had gout in my big toes 3 times...I am on Rapamune and Prograf,and have been told that the Rapamune will cause all of what I just mentioned...I know the  Transplant Center want me to come back down there to adjust my meds.but I don't want to cause my kidney is functioning just fine and I do not want to be put on Prednisone and that could be a possibility....plus I could face a rejection episode...and have to go back to labs 3 times a week again...I think I will just hang in there and wee what happens....

My prayes are with all of you still facing dialysis and transplant....would love to hear from you.....dianejorg1