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| | From:  Ruby_680 (Original Message) | Sent: 4/14/2004 11:43 AM |
Anyone got any anger, frustrations, and need to get it off your chest?.. Get it out here. What about medications, are you getting the best from them, or feel your getting nowhere?. Let us know how you feel. Its ok putting a brave face on, but at times we need to vent??. Floppy xxxx |
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Maw I know how you feel, i'm getting so frustated too. some days I'm not bad, but others, like you its hard to breath, This is my nephews wedding reception tonight (they got married abroad) and im not able to go. Just hope the steroids work for you maw. You are young and of course you want to be able to see your grandkids grow up. It's good to get it off your chest here, so drop in anytime and we'll be here for you. Take care luv, and you know I'm thinking about you. Just wish there was more I could say & do to help, But you know we're here for you.God Bless.  Love you , Floppy xxx |
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Thanks to all for listening -  Now that that's off my chest, I can rest a bit easier!! God bless you all. Maw |
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Hi I dont Know if a males Opinion woth very much, But I did come threw what you speak of, Anger Is at first Part of things, But do try to aim it corectly, That you may wonder is WhaT? the anser at the ilnes that is doing you harm, Fight it with every breath you take, With breathing exersizes for one , With starting projects you can do regardless how childish them may seem, Draw pitures, Write The computer should help, at my worst I did not have one, nor do I think my mind could have let me use one, You must realize you are limited to things you can do and understand what you cant, I do hope your spouse and friends do understand and help . Mine did and I owe them my life, You must be able to vent, or as i still callit get d angery, Still it best to be quick to say your sorryBut I think aplain talk with your love ones, I ones was very angery with my wife, I knew i was wrong and Then i sat down and told her Though it was her that it seemed i was angery with it in fact was the illness and my own stupity , I lke this board I do think it can help greatly to speak as one feels, I do hope that what ever is said by who ever no one takes ofence, Because if so this thread can not do as it should, friends understand and know when a friend is ill It can be hard to smille and speak with joy at all times I do hope you all go on as you have staerted, also that in some small way I can help any or all of you I am very happy to be your friend Bill |
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| This message has been deleted due to termination of membership. |
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Thank you Bill for sharing this with us. It's true we cant be happy all the with this illness, and it does help to get it "off your chest". All our members understand, and this is what helps us. We help each other. Gald you like this board and anyone who needs to vent, remember you can put it here, and we 're here for you. Love & hugs, Floppy xxx |
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hi guys how are you all well i had my scan done and i have to see my doctot tomorrow but could not help myself s o i opened the xray reults up, and it says there is a band od opacity in the lingula, which is nonspecific and may represnt a area of atelectasis, scarring or collapse. there are some small mediastinal lymph nodes, the largest measuring approximately 1 cm, these may be reactive. then it went on to say how there was no focal lessions in my liver, and the spleen does not appear to be enlarged, and no adrenal mass identified, the pancreas normal, but there was faecal loading in my colon,. i think i get the jist of this all i may have to get these lymph nodes cut out, is ther anyone here to help me with the understanding of this a little better,would be much appreciated thanks from barest beth hope to hear reall soon please. |
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Hi, Beth - lemme see if I can help - The atelectasis is like you said, scarring or collapse of some of the alveoli, the little sacs at the ends of the bronchial tubes where the oxygen goes into the blood stream - I have some of that too, it comes from long-term lung disease, asthma, whatever, that traps air down deep in the lungs - the alveoli die off and scar tissue takes their place - can show up as an opacity on x-ray. The lymph nodes if they are reactive could be simply reacting to a virus or bacteria, not necessarily something malignant, especially as there are no lesions or masses anywhere else. Your spleen would be enlarged if you had some sort of massive infection going on because the spleen is the major organ for the lymphatic fluid and lymph system/nodes. It is also a good sign if the report did not recommend a follow-up CT scan or MRI. When I see the word "nonspecific" I translate it as "incidental" or "not terribly important." But when it's on MY x-ray, I think it's important, especially if it is not really supposed to be hanging around. But the docs'll blow it off a lot of time. When I see the phrase "Follow-up CT/XRay/MRI recommended for further evaluation," then I am concerned. What I do for a living is medical transcription, radiology reports and operative notes- also was a scrub nurse x 10 years- quit in Sept 03 due to guess what COPD so I am a little familiar with the terms on your report. Not to mention the years I have spent trying to understand my own test results. Good luck with your doc visit and please don't be afraid to ask questions. Pin him/her down about the mediastinal nodes, ok? You are in my prayers! Mary |
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Hi maw, that is great information, and help to understand the medical names. thank you so much for answering the message. If you think of anything that would be useful, like meds or information to help us,please post it for us. Hope you are bit better now maw. It;s good to see your posts again. Barestbeth has this been of help to you?. Thank you again, Floppy |
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| | | From: deege_6 | Sent: 8/28/2005 10:54 PM |
Aww the vent room .. oh please tell me that its not my fault . My friends (using that term loosley ) that I have been in water arobics for 3 years . tell me that I require to much attention . It really broke my heart .. I really never knew they felt that way about me .. I have quit water arobics . so not to have to deal with them any more . now I am told ,that I am only feeling sorry for my self ........... which is it me or so called wanta bee's ? I thank you for letting me vent ............ Deege |
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I am so sorry Deege - what lousy 'friends' they were......are there any special places to swim that cater for people with chest problems? We are lucky in as much that a local pool here lets us go there every Thursday afternoon. It is great because everyone helps each other, and is understanding about problems we have. Failing that, go along to a pool independently and just keep up with swimming....however gentle, the exercise will help you. You are certainly right to vent off about them - and certainly not feeling sorry for yourself! Good luck....  |
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Deege, That is terrible and heartless saying that to you. Have you asked your dr about classes you can attend for chest problems. I used to go they had gentle exercies, then you went to the pool to exercise and swim. We were all the same as its was for chest disabilies and the woman taking the class was understanding. Hope this helps. Take care. Floppy |
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Hi all, I saw my specialist again today and he still can't find out what is wrong. He calls me his little enigma. He has labeled it COPD but can't say more than that. All tests come back clear except my LF is half what it should be. I can't breath, have huge amounts of mucus, can't get anything done because I have NO energy. My family is not very supportive because they don't know why i'm always tired and can't breath. They say that if the Dr can't tell me what is wrong then it must not be serious. My only friends are people on the net and I am slowly going nuts. I am still young (31) and have small kids(youngest is 3) I don't know where to go from here. Meds don't work and I am at a loss. Last week I was really sick and the stress is building up. On the 22nd I move house, Surgery (dental) on the 24th, LF tests on the 27th then the Dr after. I don't have the engery to do any of it. I'm sorry if i'm boring you but I needed to get it out there. Thanks for being there for me. |
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Ho Meg so pleased you found this page and tried to get it off your chest but whatever you do dont ever be afraid to put on the board if you feel like telling some one or having a moan thats what its all about lol sharing our troubles. We are all ways here if ever you want to chat just ask anyone to meet you in chat room and chat there. Me and floppy was only saying today we calnt do the cooking or shopping and it really get to you. You have small children as well thats got to make it so hard for you lol chin up till you have your last test. Get that off floppy sick lungs Dont show and print it off for your familly may make them understand a bit better. Well look forward to talking to you soon and dont forget we are here for you Betty |
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