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| | | From: ctk74 (Original Message) | Sent: 5/1/2004 3:57 PM |
This is directed towards Type 1's and is in no mean meant to disrespect T2's. I am a newly diagnosed T1 at the age of 29 (dx'd nearly a month ago). I have always eaten healthy, severely limited my intake of red meat, sweats, etc. I have never smoked or drank excessively and have always maintained a healthy weight through exercise. The irritant is that every time people learn or hear that I have diabetes, they automatically assume that I am a T2 and I get comments like "you could have prevented this..." or "If you just start to eat better and exercise you will be ok"... And it doesn't help when I read stuff like "In fact, it's the development of diabetes - a direct consequence of poor diet and inactive lifestyle - that is the crucial factor in this deadly chain of events." This is a direct quote from a bbc.com article on diabetes. The more research I do indicates that T1 and T2 are a completly different disorders and as such should be differentiated. How do other T1's inform people that their disease was not due to any of the above mentioned factors? Or do you just brush it off? Maybe I am being overly sensitive? |
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I was 28, my neighbor's brother was 52 - BOTH type 1. The misinformation that only children get type 1 diabetes has actually killed some people because they were misdiagnosed and not started on insulin. They misdiagnosed me, said I was "too old" for type 1, but then again "way too thin" for type 2, but still treated it as type 2 until I was almost dead. I actually know more people diagnosed with type 1 past the age of 25 than under the age of 25. |
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Julie : You are wrong. They did not change the term from JD to Type 1. Both terms are used today and have been for a long time. The difference is the exception of the age that the person is diagnosed. Juvenile diabetes means that you are diagnosed as a child not as an adult. I have been a juvenile diabetic / type 1 for 35 years. The age of diagnosis determines whether or not you are a jd. Type 1 means that you treat the disease with insulin and always have. Be Well |
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| | | From: Julie | Sent: 3/15/2007 9:04 PM |
Katt, This is from the Health A to Z website, although I have seen this information many other places and heard it many times also: Juvenile/Type 1 diabetes Prior to 1997, the type of diabetes typically diagnosed in young people was called juvenile diabetes or type 1. Diabetes emerging in adults was called adult-onset diabetes or type 2. Then in 1997, the official names of the types were changed to type 1 and type 2. Julie |
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| | | From: Julie | Sent: 3/15/2007 9:08 PM |
From the Canadian Diabetes Association If I have type 1 diabetes, what do I need to know? You need to know - Type 1 diabetes occurs when the body makes little or no insulin. It used to be called insulin-dependent or juvenile diabetes.
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I'm glad they made the change, because havent we caught many more older type I's by changing the term? I would think maybe we have? |
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| | | From: Julie | Sent: 3/16/2007 3:17 AM |
I hope that is true, Gelsey. Sometimes it takes the medical terminology a while to catch up with the way things actually are. I was diagnosed as a Type 1 in 1983 when I was 35 years old. It was easier to diagnose me correctly because I staggered into the ER in DKA barely able to walk and stay conscious - leaning on a friend for support. But for some other "older" Type 1's with a less obvious presentation, I'm sure there were lots of problems diagnosing them, which delayed them getting the proper treatment. I know that some people still use the term "juvenile diabetes", even Bush 43 used it in his first inaugural speech (if I am remembering correctly) because he knew it was a term that many would sympathize with. Popular usage and current medical terminology are two different things. And as long as people get the correct treatment, it doesn't really matter. |
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What I'm saying is that I was diagnosed as a juvenile (age 7) and I am a type 1. I have always been a type 1. Whether I was a juvenile or an adult is irrelevant. |
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ps: insulin dependent and type 1 are the same thing. |
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| | | From: Julie | Sent: 3/16/2007 8:07 PM |
Kattladie, I think all of us Type 1's understand what it means to be a Type 1. The challenge comes in the rest of the world understanding it. Juvenile Diabetes used to be a medical term, but it caused confusion for the Type 1's who got the disease as an adult (like me) and people, including those in the medical profession, didn't believe that I could have Type 1 because I first got it as an adult. And now that so many children are getting Type 2, becomes even more important that terms are used that don't confuse the issue. Oh, it still confuses lots of people. I went to a primary care doctor about two years ago because my endo thought I should have someone oversee my general health. She gave me a referral slip to a cardiologist that said,"AODM". Well, when I saw that after I got home, I hit the roof! I had carefully told her I was a type 1 and she carelessly writes AODM on my referral slip! I called her office and told them I wanted my record and billing carefully checked to show that I was a Type 1. I changed the referral slip myself to read IDDM. So there are 2 more terms - IDDM is used as a synonym for Type 1 and AODM is used as a synonym for Type 2. Julie |
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Mine was triggered they think by having scarlet fever as a child doing the damage inside and 2 years later I was diagnosed with type 1 as I passed out several times. We did not have it in our family and I don't think anyone thought it was diabetes thinking it was a temporary condition from simply being a kid. My family always gave me some type of soft drink afterwards thinking it would refresh me so I guess I was lucky in that sense. I was slender and very active as a child. I remember them taking me to a hospital in Chicago because I was so slender and rather pale but very active. They put me into the hospital taking a lot of tests and gave me injections. I still had no idea at that time why but the nurse showed me pictures to explain it all as gently as she could. My mom said they knew right away what was wrong with me. Our hometown doctor did not have a clue. It was a pain as a child to be fussed over so much. That doctor in Chicago saved my life. It though became a lot worse when I was a teen. In my twenties and thrities I kept really good control. At age 47 after a complete hysterectomy because of uterine cancer it began to be harder and harder to predict and to control. Most days I am fine having it but when my body refuses to respond to my good care I give it everyday I get really frustrated and angry. |
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I understand Julie. It all depends on the person that you are talking to and their understanding of the differences in these types of D. Be Well |
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Ps: and yes, you are right, "As long as people get the correct treatment, it doesn't really matter" The right treatment is the important thing. |
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| | | From: yaya | Sent: 8/23/2007 10:03 PM |
I do not think you are being overly sensitive.
I was diagnosed a year ago at age 29.
I was and am healthy, active, eat mostly organic vegaterian no processed sugar etc.
I still deal with my frustration with people hearing the term diabetic and associating it with being overweight, lazy and generally unhealthy.
When I was first diagnosed I felt it was my responsibility to explain to everyone that I had rogue anti-bodies in my pancreas and it was not my poor lifestyle choices that gave me this but I got tired of hearing myself say this so I have since decided that blowing it off is best.
I wish there was more education for the public on this topic. |
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Has anyone else had this problem?. . .I've reverted back to using "juvenile diabetes" to describe my disease because when I use "type 1" no one knows the difference at all. Not that they have that much more of a clue if I use "juvenile diabetes", but when I use "type 1" all they hear is "diabetes" and automatically assume I'm type 2, almost as if they do not know there is a type 1 and a type 2, but if I use "juvenile diabetes" they have at least a vague idea that's it different than the "general diabetes" constantly in the media. |
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