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I was dx in 2002...I'm not taking anything right now...Nothing I have tried works and alot of time the side effects makes things worse...Some days its just so over whelming...the first 4 yrs were terrible...this past yr has been alot better...My Dr says it can go into remission and I think thats where I'm at at this point in time... And I pray it lasts...You need to learn how to pace yourself or you will pay a price... Fibro takes alot away from us...if you need to talk or have an understanding shoulder to cry on just holler...I'm always checking in here...I was dx with diabetes type 2 in Aug 06...as if fibro wasn't enough... Blessings for a Merry Christmas and a Happy New Year |
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Thanks. I was diagnosed with diabetes about 1996 if I remember right. Always been a type 2 just really hate eating right all the time youknow? I am trying to be better. Fibro and arthritis was diagnosed I think 2005. Just the other day my NP signed the handicap parking thing so I can park closer to places. I told her some days I have to go out and get things done but all the walking kills me, especially when both the fibro and arthritis act up together. The arthritis is in my hips. Thursday I will be going to get it at the dmv. My dr never said anthing about remission...that sure would be nice. I really dont' like him..at first he was nice, but now he really hasnt' done anything but critisize me for wanting to get disability. I haven't worked in about 2 yrs. I am tired of laying down at night and feeling like I have an internal blanket (muscles) that are heavy and achey. Most days I am about a 4-5 pain wise, I have tried a lot and most the time the side effects were worse than what is already going on. But what I think I hate the most is the memory thing...the foggy days, they are very frustrating. Have a Merry Christmas! |
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I didnt like the Dr that dx me...I stayed with him for about a yr...I wont stay with one that I dont like...The Dr I have now I've been with for about 2 yrs...She likes to try long term meds but doesn't like to prescribe pain meds...I will only take pain meds when the level is at its highest 8-9...Most days I run around 5-6 but this past yr I've been about a 2-3 which has been such a relief...I have foggy days too...I had to quit working a few yrs back...I was a private duty CNA/MA...I've only just begun driving again this past summer...I was denied disability... I'm wondering how old you are...me I just turned 49... I would like to keep up this conversation with you... I dont know anyone with fibro and the online groups I have been in are not active... |
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I will be 47 in April. Married almost 8 yrears (March 15) no kids. It is so nice to actually talk to someone who understands:) I am to the point of the hearing for disability. I need to see another dr who is actually willing to say yes she can't work. I have lots of foggy days. not very good for a job...lol I would love to continue our conversation...there used to be a lady who lived in the building across from mine that had fibro and we would talk, but they moved:( I tried a couple online support groups but they aren't too active. Maybe I should check out the one on ivillage, maybe they have more people who post. |
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| Hope you had a nice Christmas. I ate like a pig. Didnt'have any extra dinner and my fasting bs was 137...i am happy with that considering all I ate...lol And the fact that my numbers are still coming down from being bad for so long again. |
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hey..... I'm Cheryl.... I was just reading through your thread..... I know nothing about fibro except that a friend of mine has it. She always talks about the "fogs", the pain and flair-ups.... I am just trying to figure out all that she talks about.... I have often asked her to describe what she is experiencing but she can never find the words.... Anyway, I hope you don't mind me popping in here but I just wanted to tell you that there is a member here in our group that has a fibro group as she has fibro....her screen name is Gelsey and she has a mailbox so if you want to drop her a note, maybe she'd be able to give you some info, help or support. Or you could just start a thread on the general board as I think that there are quite a few members here with fibro. Take care..... Peace,Cheryl |
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Christmas was quiet...just me and hubby...I didnt eat to much but had a bad stomach ache...dont no why and this morning my bs# was 203...I've had several med changes...So now it seems like I've lost control over my bs#...hubby was laid off from his job right before Thanksgiving so I no longer have insurace...I had to stop taking Janumet which was helping...it cost $190 for 60 tabs...I cant afford it...Dr has me on Glidizide and its making things worse...I'll check out the fibro group you mentioned ...I'd like to find one thats active... Hey Cheryl thanks for the suggestion |
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stress will certainly make your bs's go high.... and you've certainly been under alot of emotional strain lately.....with your pooch and hubby's layoff...... I hear ya on the no insurance thing..... my dh became disabled back in the late 80's and I tried going to work but kept ending up in the hospital because my bs's got so wacky.... so we live off what dh gets and have been for well, 20 yrs...... his back is covered for his medical problem but I have no insurance. I do utilize pharmaceutical companies patient assistance programs and they have helped me out tremendously over the years..... other than that, I go to the dr. every 6 mos.... to get forms and stuff filled out. But I've had diabetes for 33 yrs. so I've gotten use to how I feel and pretty much have an idea with what to do and if I have no idea... I ask here....lol..... I don't know what I'd do if I was new to it all. If I see Gelsey around....I'll tell her about your post...... see ya.... and take care. Peace,Cheryl |
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I forgot to ask, how did your mom like her kittie quilt? |
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Hi newby556...I got a call from my mom...she lives in Fla...she really liked it... Hi pdljmpr61...whats your name...I'm Deborah...How are you today...It's real cold here so I'm kinda hurting today... Yesterday I had a good day for bs#'s...hope I have more... What meds are you taking for the diabetes... I'm am so ready for a new year to start...how about you...maybe it will bring new changes for the better !!! |
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Hi, As a former worker for the disability program I want to urge you to file for reconsideration if you are turned down for disability. 80% of the denials are overturned. I helped my sister get hers. You do have to have a doctor that is on your side as the medical reports are so important in determining your disability. I, myself was turned down the first time and on the reconsideration I was allowed. The younger you are the more likely you are to be turned down, so as I said, it is important to file that reconsideration. If I can be of any help just give me a holler. Maureen |
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Hi Deborah....my name is Lynn. I am taking 1000mg metformin a day in the morning. Maureen thanks for the encouragement. I am waiting on the appeal but need to find a dr that will be on my side. The one I saw has an attitude of "no one should be on disability". I would like him to live through a month of bad days that I have and I don't think he would say that. I am 46 almost 47 (April). Hope your all doing well. |
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Sorry to intrude, but I see there are others in here that suffer from diabetes, fibro, and arthritis. I can relate to every comment you all make. Do any of you get sharp pains in different parts of the body, randomly? Mine hit a different spot for 2-3 days at a time and then jump to another...i.e. my second toe...then thumb base...then mid arm. Never know where they will hit. Docs would never put a name to it until I found a female doc that suffered from fibro for many years. Some days she couldn't see patients because it was so bad. She ended up retiring from practice. I developed mine after I retired so didn't have to deal with trying to get disability...what a nightmare. Would love to share support any time...chatting sometimes keeps mind off the bad days. |
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Yep... i get that. Today it is my ankle. I sure hope it feels better tomorrow morning...I have tons of running around to do:( |
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