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Lupus/Autoimmune : International Palindromic Rheumatism Society
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From: MSN Nicknamepray4acure2  (Original Message)Sent: 7/28/2007 12:47 AM

Palindromic Rheumatism

 

The recording you hear was not created by The IPRS. The opinions expressed within are not necessarily the same as those of the IPRS. The recording is played purely for the interest of anyone browsing this website.

Palindromic Rheumatism "PR" also known as Hench-Rosenberg syndrome or Hench’s syndrome. PR may also be referred to as "PRA" in the case of Palindromic Rheumatoid Arthritis and "PA" Palindromic Arthritis.

"PR" gets it's name from a Palindrome, usually associated with a word like Hannah spelt the same forward and back i.e. comes and goes, but with Rheumatism it basically means comes and goes. Although in my case having had it for many years the pain just doesn't go any more.

The "comes and goes" also applies to it moving from one joint to another affected joint, sometimes in many joints at once. It also applies to damage caused to joints unlike Rheumatoid Arthritis after a "flare up" (inflammation of the joint and surrounding tissue) the joint usually returns back to normal without any permanent joint damage.

There aren't any specific numbers on the amount of people in the UK affected with PR. As some have gone onto develop "RA" (Rheumatoid Arthritis) or another Autoimmune Disorder by the time a diagnosis is made. I have made a conservative estimate that there are a 1000 diagnosed suffers in the UK with many more at this time not diagnosed. The amount in America is likely to be 5x more and of course many others in other countries.

Hench-Rosenberg syndrome
Also known as:
Hench’s syndrome

Synonyms:
Palindromic rheumatism.
http://www.palindromicrheumatism.org/index.shtml



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