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Do you think a person has to suffer the pain of fibro before they can really understand it? |
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hi smiles, yes i think someome has to feel the pain themselves. you can hear the word but unless you experience it yourself you do not know what it is. the closest you can come to feeling it in my opinion without having it is living with someone who has it. i've heard the word a few times before i knew i had it but it was just another word or condition someone had. when you feel it without knowing what it is it is really a horrible experience. you don't know how to explain it to anyone let alone your doctor. you feel they will think you're crazy or a hpochondriac. anyway, when i finally knew there was a name for what i was feeling it was such a relief that i wasn't crazy or just imaging these feelings of pain. there is still a lot i don't know about it but by checking things out on the web and being on this site has really helped me to understsand a little more. just reading about what some people are going through has also helped. some people have the same symptoms, some people have worse. there also different levels of pain. some people with fibro feel the pain more intensely. they have a lower tolerence to pain. i believe that. so in answer to your question, yes i believe a person has to experience the pain to really understand it. hugs, chris |
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Mostly yes, but I think there are always exceptions. For one thing, pain from other conditions can be very similar, at the same level or even worse than fibro pain. I think chronic fatigue is much harder to understand without experiencing it. I have never reached that level of fatigue from lack of sleep or physical or mental extremes. |
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Yes...I believe some people have to experience Fibro to understand it...I have a family member my Brother who thinks I should just push myself and that am faking and that I am hypocrodiate. This has brought a rift between us. We use to be really really close now I can honestly say I hardly ever see him only on special occassions. That is very sad considering I pratically raised him when I was in high school. And another sad part is he only lives a couple miles away....and I am his only sister and he acts like he don't have a sister. So their is some days I wish I could actually give people something visable so they could see I do have something wrong with me. Like I have said "Try walking a mile in my shoes" I think you would understand. Huggs LovePotion |
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Honey always offers to beat them with a baseball bat and then have them go to work. :) |
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| | | From: niddy | Sent: 10/11/2004 1:08 AM |
I think people can understand, but they have to want to. It's not an overnight thing. I'm still gaining more understanding every day for trav. |
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I know I feel my Brother does not want too understand what is going on with me...I and I NEVER ask him for anything I would rather go homeless and live in my car. Or Starve...I know that sounds awful. But I was always his Big Sister and helped him in times of need. I don't really think my brother would take me in. Although I took him in for 3 months when he broke up with his now fiancee'. I just have to keep telling myself his loss but, it still does not help the hurt. Trav is lucky you love him that much to understand. Huggs LovePotion |
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I actually feel real guilt over this question. My mother told me years ago that she had Fibro, and I did some reading on the subject, but could never understand the amount of pain that she was in. I was not as caring as I should have been. I also worked for a doctor years ago that had a Fibro patient, he was a doctor that did not believe in Fibro, so we all made fun of the lady with the chronic pain....all in her head. Now I live with this horrible thing everyday of my life, and I feel so bad for not being a better daughter to someone who hurts this bad. You cannot understand this pain at all until it happens to you. Wonder how many of our doctors really appreciate how badly we feel? Maryliz |
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I understand what you are saying Levi :) I agree with parts of Niddy, Love, and your answer. Honey does not have the pain I do but he does know what pain is. He is understanding and compassionate. I understand your guilt from how you were but you did the best you could with what you had at that time. To look back with the knowledge you have now and say you were wrong is unfair to you. I wonder if you did not believe in such pain because at that time it was so far out of reach of what you knew? Mega hugs :) Smile :) |
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| I think that you probably have to feel it. We don't usually have an outward proof of this disability so people tell us we look fine. I get that all the time. I also have post polio syndrome, which has extreme fatigue like chronic fatigue as a symptom. When people tell me I look good, many times I'm barely able to stand up. But they can't see that. My husband sees me suffering and cares for me and sympathizes, but he can't really fully understand. |
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Oh my God, yes, you have to have Fibro to understand how terrible it really is. I have so much guilt that i carry around these days...my mother has had fibro for many years, and of course I did not believe or realize what pain she was in. Then it happened to me a year and a half ago. Wonder if it was because I did not treat her better, or try to understand what she was going thru a little bit more. Well, now I know. Boy, do I know. |
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  I believe that someone has to understand pain to understand what we live with...for my RSD/neuropathy pain if I asked you if you knew what it feels like to hit your funny bone...then you'd know how my feet/lower legs and hands feel 24/7....most people know how that feels and know it isn't funny buy most people have hit their funny bone and know it hurts... But what is there to compare fibro pain too? I can't think of anything that would work....most pain subsides and goes away and in most circumstances they aren't thought of again. We know that we felt this way yesterday, we feel like this today and we know that this is what we will feel this way tomorrow....ect....I think you need to know repetitive pain to understand someone with a chronic pain disorder..... *H*&*P* juls |
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| | From:  soprok | Sent: 3/10/2007 11:27 AM |
yep to truely understand. but family can feel pain for us but to only a certain extent. hugs soprok |
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