This page is still a work in progress.

However, I will be adding a few links on here for now to help you find some extra support and resources.

If you come accross any other links that may be helpful to other Caregivers, please send them to me and I will be happy to add them to this page. email me at [email protected]

These are excellent websites! They are all loded with information!

http://www.thefamilycaregiver.org/caregiving_resources/index.cfm

http://www.wellspouse.org/?gclid=CIDk_KSL5JQCFQKfnAodGW6BRA

http://groups.msn.com/SocialSecurityDisabilityCoalition 

http://rsdrx.com/four_f's_diet.htm

http://nccam.nih.gov/

http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.aspx

http://caringbridge.org/

Last but not least, You should start shopping for Attorney's. Check their references, experience, and test their knowledge. You will definatly need an Attorney if you have to deal with Workman's Comp or Social Security or Social Security Disability. Do as much research on these subjects as you can along with researching RSD. I will add a page link for Attorneys and Workmans Comp and for finding Doctors as soon as I am finished gathering more information so check back now and then.

You are not alone in this. RSD affects your whole family and your friends. We are here not only for the person who has RSD but for their family and friends as well. Please invite others in your family to join and learn all you can. RSD can be a very lonely and painful life to live and the more support you all have the easier life can be. We want to share with you because we want you to understand it and we want to help others who are affected by this horrible dystrophy. Please feel free to ask any questions. Don't be affraid to post it.