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Coping With RSD : scared to death...
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 Message 1 of 3 in Discussion 
From: MSN Nicknamemommazshine2  (Original Message)Sent: 3/28/2005 3:02 PM
Hello Everyone...
 
How do you know when RSD is spreading to other parts of your body?
 
With each new ache or pain I am engulfed in fear.  I have stage II in my entire left leg.  I had always heard about how the disease would "mirror" into other parts of your body but thought how could that happen...
Through research and educating myself I have came to understand exactly how.
I  could ask the doctors but they would give me the textbook answer but I would like the personal experience answer... which to me means volumes more than the doctor could even imagine.  Unfortunately, through suffering with this horriable disease we understand alot more about it than we would have ever liked to have had understood.
 
Better dayz,
Mommazsunshine2


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 Message 2 of 3 in Discussion 
From: MSN Nicknameannie57011Sent: 3/28/2005 11:20 PM

Good LORD knows we do not need this spreading,,,, When mine spread,, I had some of same teltale signs going on as in beginning,, As for me saying,,, it not justified,,, from me,,,, As I do not have feelings from waist down. So I do not suffer in pain as all of the rest do.. Pleeez ,,, know I suffer,,, it is not the same manners... As I live with fire day in n out.. ALL in my buttt,,, so it cann be really said in truth,,, I am a pain in the butt..The fire is no less,,,,,, them explosions are not funn living with going off in my buttt. Sounds funny,,, it is funny,,, till feeling the pain... So I cannot ,,, Say per say,,,, as each one is different..... Glad U can take the neurotin.. Hope your easter was blessed n  keeps on being blessed                       annie


Reply
 Message 3 of 3 in Discussion 
From: MSN NicknameClaim-Jump-JerilynSent: 3/29/2005 7:05 PM

 Hello

 I have rsd for 5 yrs and yes it has spread from left arm to neck spine to rt arm horrible burning shooting pain thats how i knew and i also have had to do my resaerch as my doc and all the docs up here in northern canada are not and somhow refuse to get educated no matter how much i show them i have to fly 2000 miles to get to specialists oh well it is life

please do not hesitate to call on msn or yahoo

[email protected]

have a great day

He