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| | From:  gallaghera (Original Message) | Sent: 4/6/2006 6:38 AM |
does anybody have any tips on dealing with RSD in relation to the depression and additional stress that it causes? I've only been diagnosed since Nov. 05, but since i both work and go to college *not handicapped eqiupped* full-time, Ive been feeling entirely overwhelmed. that medications my neurologist has prescirbed so far have had terrible side-affects and im getting to the point where im actually scared about my furture! I dont know if i should try to continue on the path i had before my injury, or if i should set more realistic life-goals for myself (which feels like giving in). and the more i think about this, the more stressed I become, then my foot starts twitching like a dog!! i've learned to find the humor in certain situations, but other areas of my life (like not sleeping, hypersensitivity to touch, insomnia, panic attacks, fear of falling down stairs again {dont laugh}and making this worse, not wanting to go to bed because the sheets rub against my feet,etc.) are suffering. Any suggestions? im trying to be positive, but with all of the neuropathic meds the docs have suggested, i get the bad side effects, like mania, temporary amnesis, paranoia and so forth. Im off of all of the medication for this except tramadol (does nothing), but am having problems getting past the diagnosis of "RSDS".... my friend has been diagnosed for 14 years, and she said the first year is the hardest... is that true? is there any upside to this situation?? i am terribly clumsy and stuck on the fact that i can reinjure myself even more so. what to do? thanks, adrienne |
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[[[[[[[[[[[[[[[[[[[[[ Adrienne }}}}}}}}}}}}}}}}}}}} soft huggzz my dear one.... Well,,,, the first two yrs can be really hard.. I know quite a few people with rsd going,, thru college,,, for more than 6 yrs to get thru.. That is entirely up too you... Look up dear one,, there is good times ahead for you.. Maybe ,,, you need too look at the drs. again,,, They should be trying too help it seems!!!!!!! One thing you may try,, u mentioned hyposensitivtyin your foot,,,,, why not try sleeping on air bed?????? That foot should not have any pressure on it what sooo ever... Whenagravated,,,,, that hyposensitivity will last longer.... It may take a while too find what works for you.. Keep fighting that depression,,, you can win... Do not let this monster beat you in any way!!!!!!!!!!! Some of the antidepressants that the drs. puts you on will cause them affectss also,,,, maybe want too look at that!!!!! Also insomnia,, is all part of the pain issues.... So do not let this beat you none of us win ,, when one gives up,,,, quitters are not winners....... Seems like a super long highway for us,,,, for some of us it is... Finding a good physical therapists is super important.. The physical therapists job is too research what n how therapy can n will work... HOT or COLD<,, wet warmth,, or wet cold what does work,,, Them side affects are really more than we need.. We all deal with it.... Remember some one else could benefit from what you learn... We all can benefit,, if we stick together!!!!!!! Sure do hope this helps... loves n huuuggzzzs KEEP US INFORMED>>> feel free too vent any time....  |
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Reply
| | | From: CJF830 | Sent: 4/10/2006 3:04 AM |
Hey.Yeah I hear you.RSD changes your life goals and you become affraid to move on not sure if its bitting off more that you can chew.I work full time because I have to .Money is tight.There fore my house is a mess.I played golf last week So for 3 days I suffered.So I think is it worth it?I dont have an answer.I have had RSD for at least 4 years.Diagnosed this past fall. I have pain all over and Its moving to new areas....I worry if the next spot will knock me out all together.But a good friend of mine worried about me.Suggested I seek help on a mental leval.Learn how to cope.I think that is a great Idea.Last week or so I have been at rock bottom.With reactions to new meds.To pain getting much worse because they stopped one med.
I think it would be good for you to talk to some one.See what they see for your future on a realistic side.We cant do this alone.Thats why we are here talking to each other.
good luck and let me know how you make out.
Carla
Just put RSD in the comments so I know who its from -----Original Message---- From: gallaghera < [email protected]> To: RSD Helpline Support Group < [email protected]> Sent: Wed, 5 Apr 2006 22:38:13 -0700 Subject: RSD>STRESS>DEPRESSION
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New Message on RSD Helpline Support Group
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From: gallaghera
Message 1 in Discussion
does anybody have any tips on dealing with RSD in relation to the depression and
additional stress that it causes? I've only been diagnosed since Nov. 05, but
since i both work and go to college *not handicapped eqiupped* full-time, Ive
been feeling entirely overwhelmed. that medications my neurologist has
prescirbed so far have had terrible side-affects and im getting to the point
where im actually scared about my furture! I dont know if i should try to
continue on the path i had before my injury, or if i should set more realistic
life-goals for myself (which feels like giving in). and the more i think about
this, the more stressed I become, then my foot starts twitching like a dog!!
i've learned to find the humor in certain situations, but other areas of my life
(like not sleeping, hypersensitivity to touch, insomnia, panic attacks, fear of
falling down stairs again {dont laugh}and making this worse, not wanting to go
to bed because the sheets rub against my feet,etc.) are suffering. Any
suggestions? im trying to be positive, but with all of the neuropathic meds the
docs have suggested, i get the bad side effects, like mania, temporary amnesis,
paranoia and so forth. Im off of all of the medication for this except tramadol
(does nothing), but am having problems getting past the diagnosis of "RSDS"....
my friend has been diagnosed for 14 years, and she said the first year is the
hardest... is that true? is there any upside to this situation?? i am terribly
clumsy and stuck on the fact that i can reinjure myself even more so. what to
do? thanks, adrienne
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Reply
| | | From: mggone | Sent: 4/16/2006 11:44 PM |
hi, i am ericka. the first year is hard but you have to remember that life will alway's put giant rocks in your path what you choose to do about the rocks is what makes life . if it wasn't your injury it might have been something else . decide what changes you are willing to make and what you do not what to change. then adjust your path .i know that sounds weird but it is life.i just think this is something that happened to me it is not something i caused to happen. just decided what means the most to you. do that and put the rest aside,you could always get better and go back to it or you can go for what you want now and suffer through it. only you can make that decision.it does get easier to handle but you have to want it to get easier.what i mean is it is real easy to let this eat you alive. you have to tell yourself i will not let this kill me.(inside) your life won't ever be the same but it is your life. hope that help's. be well ericka |
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Reply
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HI im new to this too 3/5clausagia due to back surgery and sticky root nerve. just read in usa today only 48PERCENT in indepentant studies showed improvements with anti depressents. i cant take any of them. so dont fret over it. i take ultram with neutron and zanaflex and have to say 80% of the time the twisting and jerking is under control and with the injections in my back the refered pain (searing burning couldnt touch it) it reduced to a numb cool area that i cant handle but is ok with covers and socks etc. i hope this wasnt too much information, and im not telling u this is the answer for u. no one knows that yet, but giving u some names of meds u might want to ask if possible for u to have a trial test run of. i have been very luck to get good care right from the start. good luck lynn in iowa |
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