|
|
 |
|
Reply
| | | From: kdutton (Original Message) | Sent: 6/10/2006 11:13 PM |
Incase anyone wants to think I am totally new to the idea of RSD let me give you a breif history. In 1995, March, I had to have surgery on my left wrist by May 1 of that year I had RSD in my whole left arm. This went on for about 5 years. After going thru all the medical mumbo jumbo to get a DCS I went into remission. I was in remission for 51/2 years. I was on cloud nine. Now it is back with a fury. On May 1, 2006 I was rediagnosed with RSD, this time in my left leg, due to a broken knee cap. Due to the fact that comp doesn't want to pay for the treatment for RSD they have refused me total treatments. Thanks to these people, comp, the RSD has spread to my left arm. Due to the fact that it spread so quickly this time, my doctor feels that the RSD will continue to spread until I am wheelchair bound. I have finally been able to sumit for a comp hearing but who knows how long it will take to get it. In the mean time I am pretty much home bound because I have a very difficult time walking. When I do go out people look at me and point, I have a hard time keeping balance due to the RSD affecting my whole left side. I am tired all the time because I can't sleep due to the pain. I have different pain meds one make me feel like I am seeing things that are not there and the other one gives me a migraine headache. Nothing is helping. Kathy |
|
 First
Previous
2-8 of 8
Next
Last
|
Reply
| |
hi Kathy I didn't have the pleasure of dealing with Comp. I was hurt as an out-patient and sued the hospital. Lost and I now have an Appeal going, hoping to hear something soon. I live on SS and SSI for my 2 boys my daughter is too old and on her own. Topamax was given to me for headaches, but with the changes in Medicare and Medicaid I can't get it anymore. I can't walk that much either, and if I have somewhere to go I have too really pump myself up. I hear that people goe into remission, does that mean eveything disappears? Pain sores everything i have had this for 10+ yrs and sometimes it is not as bad like my pain may be a 3 but i am more around a 6-7 all the time. thanks Kim |
|
Reply
| | | From: kdutton | Sent: 6/13/2006 6:34 PM |
|
According to my doctor it is unusual to go into
complete remission, and that I was one of the lucky ones. When I went into
remission I had no pain at all. Of course they also think that is why when I got
RSD back it came back with a vengence.
----- Original MessaI ge -----
Sent: Tuesday, June 13, 2006 1:04
PM
Subject: Re: The spreading of RSD
The
spreading of RSD
Reply
|
|
| From: tenyrsandgoing |
hi Kathy I didn't have the pleasure
of dealing with Comp. I was hurt as an out-patient and
sued the hospital. Lost and I now have an Appeal going, hoping
to hear something soon. I live on SS and SSI for my 2 boys
my daughter is too old and on her own. Topamax was given
to me for headaches, but with the changes in Medicare and
Medicaid I can't get it anymore. I can't walk that much either,
and if I have somewhere to go I have too really pump myself
up. I hear that people goe into remission, does that mean
eveything disappears? Pain sores everything i have had
this for 10+ yrs and sometimes it is not as bad like my pain may
be a 3 but i am more around a 6-7 all the time. thanks
Kim | |
View other groups in this
category.
|
|
Reply
| |
I notice that if I don't take one of my meds the pain hits me like a brick. I've tried to go off them thinking that I'm ok, when I'm at around a pain scale of 3. But then about 2 days, I am ready to scream again. I think the only time I did have some sort of remission was 1 to about 5 months pregnant. I had to get off almost all the drugs b/c of the baby, but the pain seemed to have lessened until 5 months then it went into my legs. By 7 months I was so sore, I told him I wanted the baby out, but he wouldn't do it, b/c of his lungs not ready yet. At 8 1/2 months I was induced. I told him I couldn't take it anymore and he did 3 ultrasounds, was still hesitant to induce. But "B" (Brian) was born 8lbs 1 ounce and NO side affects, thank goodness. Til today I still try to go off my meds but it only lasts for so long. I think maybe I should get pregnant again just for the relief. LOL |
|
Reply
| |
{{{{{{TEN }}}}}} Do not stop taking meds dear one,, that is not good. Reason pain hits,, nothing there too block it. As long as you are dealing with chronic pain,, there is not much chance of gettin addicted too any chronic med.. The chronic thing that we need sometimes has to get stronger. We do not like affects of them,, we feeling like a pharmicy that is for sure on.. O well.. Glad they are there for us too help us. Yes there are answers ,,, we really are going too have too search it all out. Please do not be afraid too holler at me.. I am going too try n email you from my yahoo account. annie5769020,,, so please be on look out for it Hoping that I can help. annie |
|
Reply
|  0 recommendations | Message 6 of 8 in Discussion |
|
| This message has been deleted by the author. |
|
Reply
| |
Well I was diagnosed with RSD 7 years ago while on Active Duty (Air Force) after having surgery, so now I deal with the VA and never had the pleasure of having to do the Workman's Comp and am not allowed to sue the Air Force. After 3 Spinal Column Stimulator's and 6 surgeries, my RSD has spread ( of course - it has  )and how more problems with my back because of the SCS surgeries also in my neck and so on..I can say, when the VA goofs up and I don't get my meds on time, my pain goes crazy and I can't sleep for days. Which doesn't go well with my full time civil service job either..  So I don't recommend to anyone to try and go off the meds, unless you're trying a new one. I have my 3rd SCS for my right hand, but I don't have connected to my left and right foot (which also have RSD) and my left hand (which has beginning stages). Remission? I only dream of it...and pray for it...  |
|
Reply
| |
I developed RSD after an on the job injury in 1999. My RSD started in my right hand then moved up into my whole arm. My Spinal Cord Stimulator takes care of about 85% of my pain unless I use it to much then my hand flares up for days. I have had 7 years of dealing with workers comp. I finally had to break down and get me an attorney. I have read that if you have RSD you should not have surgery because you can develop it in that area. In my case after my first stimulator surgery I developed RSD in my hip. I have had numerous doctors tell me that this is also work related. But of course they want to keep sending me to their doctors until they hear what they want to. I hate taking medication but since my accident I have been severely depressed. Sometimes like a dummy I think that I am doing great and don't need to take it any more, and then it takes me 2 or 3 months to get to feeling better again.
At times I just want to be "normal again".
Diana |
|
|
First
Previous
2-8 of 8
Next
Last
|
|
|
Free Forum Hosting
Important Announcement
Return to Coping With RSD