Hey gang,

 

Wanted to give a little friendly advice for those of us who are suffering from RSD. Take care of yourself! ok so we all know that about our physical pain but how many of us think about the mental pain we are in? Mental pain you say? Well we all suffer from some degree of mental pain and having talked to all of you in one way or another I know this to be true. We are grieving the loss of part of our body, we are angry that this has happened to us, we feel hurt because the doctors don't seem to listen or seem to just not care about how we feel. Hey guys I didn't start this group because we don't have mental anguish over this disease. If we didn't we wouldn't need support right.

 

Some suggestions for coping? Relax when you can, take a hot bath with bubbles, read a good book, go shopping if you can, do anything that will help you to feel better about you. Haircuts are a great options as some of you have told me. A light massage works, nothing too deep though so you avoid pain. Go to a movie if that is what you like to do. Do whatever you need to do to make the activity as painless as possible. If you need to carry a pillow to sit on do so, if you need to use a motorized buggy to shop, do so. Don't feel embarrassed by it...I should talk I have been avoiding it for a long time...but no more.

 

If you guys need to talk just ask me...I'm there for you. Some of you already know I will give you my phone number for those times when you can't deal with typing. I am willing help you in any way I can.

 

I care about all of you and I am here for you.

 

((((((hugs to all))))))

 

Janine