There are many different kinds of RSD. When it is systemic or the kind that I believe you are referring to it is called Dysautonomia, a severe form of RSD, a nervous system disorder. RSD causes swelling, severe pain and discoloration. Dysautonomia a.k.a. full body RSD can also cause immune system repression and a rapid heart rate.
There is no known cure for RSD. Some people who have RSD eventually heal, but that often takes years and many never heal, having to live with the pain for the rest of their lives.
RSDSA is a really good website to visit so is American RSD Hope. A friend of mine is a mentor there. Both of those places have hoards and scoards of information available just for the asking. They both have a lot of information to read right online.
Through another organization American Pain Association another friend of mine finally got treatment after almost 8 years of substandard care. It takes a lot of reaching out to others and a lot of asking questions. I am really sorry that your family is so non-supportive, sometimes the only family you have left with RSD is the family you find in the online support groups, and just like family some are closer than others. Don't give up hope EVER -- the cure is on it's way -- each one of us has to stick together and pray that each of of us is together racing for the cure -- arm in arm -- hand in hand -- so the day the cure comes we can hang onto each other and the tears are no longer tears of pain but tears of joy and we will know that we are the winners and we did it together.
By the way, anyone that has seen any of my previous posts and noticed the horrible spelling in all of them and not this one!!!!!!!!!! I am now fitted with voice recognition software on my computer and I LOVE IT!!!!!!!!!!!!
Bless all of you!
Normalee
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