Annie, I, too, have trouble with sleep. A side effect of rsd is difficulty in getting to REM sleep. I would toss and turn, and put myself into more pain. Now that I know this, I think I am a bit less stressed about sleep. I guess I feel less pressure.
Here's my story: I have rsd in both my hands and wrists. I am not absolutely sure how I got it. All the drs I have seen poo poo my thought of how I got rsd. I think it came from pulling on some paper to get it unstuck from a machine. I had had C5&6 fusion surgery just a couple months before and was still in the brace. But really, I figure it doesn't really matter how, it matters, just that I have it. When I was finally diagnosed 4 years ago, it was on my birthday, I thought it was a wonderful present; I now was out of pain (stellate ganglion block that day) and I knew what it was, so now it would get cured. HA! 2 days later it all came back. Because it is on both sides the blocks can only be administered to one side at a time. The side that doesn't have the block in it kick starts the side with the block.
Anyway, I have been through more blocks and different kinds of blocks, SCS, and now just meds. So far the meds are pretty consistent for a normal, non stress, warm, low movement day. If those days happen I can handle them. The other 364 days I need rescue meds. That's it to my story. I am often reading on this site, I don't post as much as I should.
I hope you are having a low pain, good movement type of day! |
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