Dear Annie,
As I know that RSD is the most horrible experience that I have had to deal with, even childbirth was easier. I am so sorry to hear that work is getting more difficult for you. As much as I love to work and know that it would be better than nothing I physically cannot deal with it. I would need a job to accommodate my needs instead of the other way around. I am in a battle with the company I did work for because it was caused from an injury that happened while I was working and still they chose to deny me and fire me. Hang on as long as you can just the mental relieve is something. having something to stimulate the brain. however, receiving disability is not a weakness only a cause of having become a victim of RSD. You seem very intelligent and I would imagine that putting energy into helping research and developing support groups would be helpful. That is my most difficult challenge. but I have made it my mission to educate people on RSD and just how disabling it is
Keep up the good fight
Elaine
-----Original Message-----
From:
RSD Helpline Support Group <
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To:
RSD Helpline Support Group <
[email protected]>
Sent: Thu, 30 Mar 2006 18:20:09 -0800
Subject: When is enough, well--- enough?????
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New Message on RSD Helpline Support Group
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From: fairchild7437
Message 1 in Discussion
Folks, please help!!! I'm relatively new to the board, but have had RSD for 7
years in my dominant hand. I'm a university professor-- so I type on the
computer all day, and my hand is slowly getting worse, with slower typing and
more errors.
I have asked for ADA accommodations-- my doc recommends a secretary-- but the
university has refused. I can't consider filing suit-- it' s just not something
I can go through now.
I have been working longer and longer hours as my hand gets worse. My recent
evaluation was mildly negative-- I don't produce enough manuscripts, etc. But
by objective standards, I'm far above average, because I'm working so hard in
compensation. Maybe discrimination? I don't know.
I do know I've developed hypertension, asthma, osteporosis, 3 stress fractures
in these 7 years at age 50. My family died young of heart disease. Neurontin
and Prednisone added 60 pounds that I haven't been able to get off. Morphine
doesn't help with weight reduction either.
I can't get on a good exercise plan because my work load is so extreme. Think
70-80 hours a week, and I'm a single mom with 2 kids. I am completely
exhausted.
I tried to talk to my pain doc about it, but he is uncomfortable and doesn't
know how to talk about coping issues (his terms). I have disability insurance,
but in my family, we are all high achievers, and I've never actually thought
about going on disability. But given the weight out of control, the multiple
illnesses, and the work out of control (not to mention the pain), I'm wondering
if I'm being stupid.
When does one just say it's too much to try to do a job when your body doesn't
work right? Is there a solution I can't see?
Many, many grateful thanks for anyone who will respond to me. Please just tell
me what you've learned!
Blessings,
Annie
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