I met with a doctor today who has headed up several RSD research studies.  He has been the most knowledgeable doctor of this disease that I've met so far.

 

I tried a Spinal Cord Stimulator two years ago with a 50% pain reduction.  I was devestaved when the doctor said the results were not good enough and he wasn't going to implant it.  Since then, I have heard horrible things about the stimulator not working so I've been glad the implant was refused.  The doctor I met with today reassurred me that the stims have improved and that now instead of only 4 contact spots, there are 16  - 8 on 2 leads placed in the spinal column.  He wants me to go through the trial again, as he doesn't think there are other procedures to try.

 

I also brought up the new Ketamine infusions.  He seemed reluctant to try it, but has agreed to let me try it a few times.

 

Could anyone please tell me their experiences with both the Ketamine treatments and/or their stimulator?  I've read so much contradicting research!!

 

Thanks,
Meri