Thank You for the reply - I'm set to have the shunt put in next week - I guess it will be in for 3 - 7 weeks.  The idea of moving with something sticking out of my spine gives me the willys. 

 

 I REALLY miss my kids at school - I've been working on an accred. process for almost 4 years, and wouldn't you know that they're coming for the inspection next week.  I have a great staff - but I still wish I could be there. I'm not good at being off of work - Too used to being on the Go all the time. I haven't been able to take ANY of the meds- so I just have to tolerate the pain - it seems that when I have more "down time" the pain is worse - maybe I just think about it more.  Too bad RSD doesn't have a "quit" button.  I keep telling my Doctors that I don't "want to play RSD anymore" - but it seems to have found a comfortable place in my body - and shows no sign of leaving soon.

 

Has yours spread to different parts of your body?  Is ANY part safe?  Have you lost a lot of weight with it? I keep shrinking.  Do you have any idea of what they do after the tendons have detatched from the bone - they're working on keeping my left leg and arm in use - so my right leg is in limbo at the moment.

 

Thanks again for letting me pick your brain.  It's good to hear from someone who has been through it.

 

Cindy