Thanks so much for the support.  I guess what I hate so much about this disease is that it has managed to get me down - nothing ever has before.  It keeps reminding me that I really am NOT in charge.  I wish I could work - being with all the kids really helps me.  I'm having surgery on Thursday - and I'm hoping for the best - what else can we do I guess.  Does anyone have the problem of weight loss - I'm in a 5 junior now - and shrinking.  if I get any smaller - I guess I'll go naked, cos my clothes are falling off, and I can't make it through a store to shop any more.  I've tried shakes, and protein drinks, but I haven't much appitite.  the Doctor told me he'd like me to stay about 111 pounds - Yea RIGHT!!  The pain is much worse than morning sickness. 

 It is sooo nice to have found a place where other people understand this crazyness. It messes with your mind - everthing you THOUGHT you knew is now different.  A spider web touching you feels like a thousand bee stings - that's hard to understand.Sometimes it would almost be nice to BE CRAZY - that at least would make sense.